Posts Tagged ‘Hep C’

Post Interferon – Post Celexa – Take 2 with Lamictal (Lamotrigine)

Posted: July 8, 2012 in Uncategorized
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Man oh man how nice it was when Celexa worked for so long in keeping the Post Interferon headaches at bay. And how disheartening when it simply stopped working about 5 months into treatment. So with my Doctors counsel I tried to first double the Celexa from 20 mg to 40 mg only to have my headaches increase in intensity almost immediately. But, since the Celexa had taken two weeks to feel somewhat positive to begin with I held on for two weeks suffering through an intense basically constant headache through the first two weeks of June, and then finally gave up on that increased dosage strategy, and went back to the 20 mg for a week, then down to 10 mg and then off for about a week, before beginning the next step in this process, to try lamictal. I had used it once a few years back and had some good luck with it however I’d stopped when laid off from my recruiting job, and losing my health insurance. The experiment of course was to try several different meds until I found one that worked, while I have the good health insurance, and before I take any major entrepreneurial risks. I just want to be fully operational, or even just find something that makes me fully functional and for a while Celexa worked, until it just didn’t. When I stopped taking the Celexa though, I was reminded of the original headaches I’d been taking it for to treat in the firstplace. I was hoping that conditions and variables had changed, or rather that my quitting drinking coffee was going to make the headaches disappear entirely and therefore make the headaches disappear, however this wasn’t the case. It was weird though, getting off Celexa, about as weird as getting on it was. I was out of sort, dizzy sometimes, and just not myself.

So Lamictal, originally suggested by my Neurologist a few years back takes about 2-3 weeks to get up to its full dosage and I’m only about 4 days into it but so far so good. First of all I didn’t have, or haven’t had any of the skin rashes they warn you about which is apparently the main reason you have to ease into it, but also I woke up with one of my headaches this morning and it was the kind that usually stays with me all freaking day, however after taking a few tylenol and going to the gym it was gone, and I’ve felt pretty good all day.

I am hopefully for Lamictal , but if it doesn’t work I’ll just try for six months like I did Celexa, then try something else. In the long run, I’ve now quit smoking cigarettes, and a full month off caffeine trying to get rid of headaches and there must be light at the end of the tunnel. The Celexa was good for a while, but it ended up just causing another kind of headache and also some seriously weird stomach issues that I was very very tired of. So maybe Lamictal will be better.

If not, theres still Lexapro and Wellbutrin to try out and if I get real desperate I guess I could even try Prozac…. I had really hoped quitting drinking coffee would do it… but hell, at least my teeth are whiter! 🙂

In other news, work is going great, even though I had to work through a massive headache in June, I have still managed to be over 120% of quota every month and therefore making some great money. I head to Cabo in a few weeks so that should be a blast and I’ll be sure to hit up some AA meetings while I’m down there. It will sort of be dangerous, I’ll be hanging with old friends who all drink and party still but I figure I’ll just go from the airport to the clubhouse that supposedly speaks English and then head to the hotel so I have an escape route at anytime. I’ll also have my cell phone at all times so shouldn’t be too tough , and the place looks like a dream come true, Barcelo. I deserve it, I’ve worked hard the last few months and taken care of a lot of debts.

Maybe I’ll come up with some new book ideas, the beach always does that to me!

Jared Bryan Smith

Post Interferon Syndrome vs Celexa 20 mg – 90 days in… thereabouts…

Posted: April 14, 2012 in Uncategorized
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Lets see, that has to be about right, maybe 60 days because I guess I started taking the Celexa at the end of January and now we are rounding mid april so probably 70 days or so. The great news is that I rarely have the major stop me from functioning headaches anymore, taking the pain level from an easy 8 or 9 to a most days nothing at all and when the headaches do return it is a mild 2 or 3, not the all encompassing pain I experience full well half my days for so many years Post TX. Is it the medicine, or perhaps just the amount of time now finally getting on close to 4 years post TX, I really can’t say but I’m too scared to try and stop taking the medicine. I’m much less manic, much more focused and consistent and I’ve been outperforming at work and doing well. Save a couple of emails from disgruntled cheap shot customers, lol, in one I called my VP of Sales the price Nazi and since he was out I could offer an incredible price and the stupid customer sent it to my boss, the little pain in my ass, I was called in and reprimanded. Since when is Nazi a bad word… Oh well, who cares, life goes on.

The major downside of Celexa I’ve noticed though is that I’m not as driven and or motivated if you will. I’ve written almost nothing, nothing in the blog, books, barely anything in my own personal journal. I do my job well enough, even put in the extra hours for fear of being laid off yet again in this fickle economy, but as far as extra curricular, the gym, the blog, the meetings, I have been barely getting by.. And the meetings. the thing that has literally held me together the last five years, well I will be honest, on Celexa, while I still go, I don’t really feel like I get as much out of the meetings as I used to, don’t feel as compelled to share, and don’t leave with the sense of accomplishment and well being that I used to… now it’s just a blah feeling… but no headaches. Hard to weigh the pros and cons. I mean I’m not going to stop taking Celexa, I simply can’t. But there is a lot to be said about losing the drive to write, work out, or go to meetings and be passionate….

Also peeing. Urinating and orgasms, now take effing forever. Sometimes I’ll have to pee really bad walk in the bathroom and sit there for five minutes just waiting and waiting… weird side effect. In addition my super regularity is gone, as you could have timed the stock market on my morning movement prior to Celexa, and now, who knows, sometimes its a few days, sometimes its daily, which is strange for me.

Are those symptoms things worth the headaches being gone? Hard to say. I guess I’ll keep on keeping on, grateful that I’m cured of Hep C and alcoholism, or daily reprieve or what have you, and just be glad that something, anything was able to treat the headaches at all… for if this thing treats them one way, perhaps Lexapro, or Wellbutrin will treat them another, and I owe it to myself to explore those ways as well. Hope is better than despair I suppose, and headaches for years was starting to get a bit desperate for sure.

I’m grateful I’ve found something, but am definitely open to the possibility that something else may treat them better, and this time at least it will be nice to know I can fall back on the Celexa, should the headaches return. Also I may as well use whats working for a while at least, or hell for economic reasons at least wait until Lexapro has a generic.

– Jared Bryan Smith

Post Interferon Syndrome – Headaches and Celexa (Citalopram)

Posted: March 4, 2012 in Uncategorized
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So I made the move back to civilization from the mountain house, and I’m loving the new apartment and the new job. More than anything, all the fear wrapped up into not being able to perform at the new job is beginning to dissipate as the Post Interferon Syndrome headaches have been so diminished with the new meds. After Interferon I was so shocked to have that brain fog penetrate through and destroy my quality of life for many years after I stopped Interferon. I mean it sucks even worse because the doctors won’t admit it’s happening, blame it on other things, and tell you such idiotic things as, “Just take a multivitamin” or when you tell them about your symptoms kind of look down their nose at you and state “Well, if you say so.” I mean it’s quite remarkable really, how online you can find multiple people suffering from an almost universal diagnosis, and then go to three educated doctors in a metropolis like Atlanta, and have your General Doctor, your Gastroenterologist and your Neurologist, all basically say Interferon has no lasting side effects, so this must be an anomaly or just in your head, or even that you’re being a hypochondriac to the point you almost question it yourself. But I wrote about it, I journalled and I was even able to stop working for a while, move out of the city and see if it was allergies, pollution or something I hadn’t thought of, and the headaches persisted. I was still, 3.5 years later suffering from brain fog type headaches at least 66% of the time, which made selling, or making cold calls very tough if not impossible. So in 2012, facing a new job, a highly micro managed job, I was really scared I wouldn’t be able to perform because of the headaches. Two or three weeks into it, I was still suffering 2-3 days during the week, so almost out of hope, I decided to take a scientific practical objective look at what meds might possibly do for me. This is despite my being a member of Alcoholics Anonymous and opposed to being on any mood altering substances. I had tried anti depressant while I was beginning Interferon and I had been so early in sobriety, I felt like it made me more squirrely and even so uncomfortable that it made me think of drinking more often, and trust me at one year sobriety, I wasn’t in a position to be flirting with that possibility. Especially as I was just starting my battle against Hep C, the disease which attacks the very organ my liver uses to process alcohol. So my attempt at mood altering substances, or anti depressants had gone so bad I just was afraid they would make me want to drink again, but at 5 years sober, the headaches practically making me an invalid, I finally decided, hell or high water, I would give several different substances, 90 days or so, give them a fair shake and see how much better or worse I felt, just so longed as I didn’t drink or drug, it was worth the experiment. I’m glad I did.

It’s mind boggling how well Celexa works in combating my constant headaches. I mean it just doesn’t make sense it’s so effective. The first week or two was weird as I was adjusting but after I got over the hump, I mean to tell you the brain fog headaches I would rate as an 8 or so, fell down to around a 2, and the frequency of around 66% of the time or 2/3rds of the time walking around trying to function in pain has been reduced to around 1/10th of the time. They also gave me Prodrin to combat the migraines, the other kind of headache that actually significantly went away when I quit smoking 2 years ago, and it’s basically caffeine and a ton of Tylenol, but that too does the trick on that particular kind of headache. I am just so grateful I held out and waited, and found something that finally worked. I will give this another 90 days or so, or maybe even after that explore other ones to see which one I function the most highly on, but this is like a minor miracle to me, because I was suffering for so long, in so much frustration and pain, and I thought it would never end. I still don’t understand it. Could it be I was so depressed, or so chemically imbalanced it actually caused physical pain to my brain. I mean that looks like the case but seems far fetched and unlikely, however, I am not a chemist, a doctor or even educated about such things. All I know is it killed my headaches, made my life functional again and I am grateful.

I was written too by someone recently stated they had to go back on oxys because of their post interferon pain, and let me tell you man, I can relate. I was an opiate addict for a long time, and I write about that part of my life significantly in my book Hippopotamus Sea, however, I am not going back to that shit, ever again. Not saying I haven’t been tempted over the last 3.5 years though, I thought about it at least once a week for sure. It just isn’t an option for me anymore, I’d sooner eat a bullet. Just like any drug, I need more and more, for less and less effect, and it’s what caused all this bullshit to begin with. I’m not ever going back to that, and if you’re suffering I beg of you to quit the opiates and try Celexa, for some reason it really helped me with my post interferon symptoms. Opiates and drinking, relapse in general is not a viable option, period the end. Other than catastrophic surgery and taking the meds with sponsor supervision, we with the disease of addiction can not flirt with pain meds or drugs effectively, and even with the Celexa, I was in constant contact with my sponsor and letting him know exactly what I was trying, and he was aware of every decision I was making. Accountability is key in sobriety, and no matter the pain, there is no excuse to going back to opiates, drinking or any kind of narcotic. With us to use or drink is to die.

That being said, I do still feel a bit anxious from time to time on Celexa which makes me want to try Lexapro because I hear that it has an anti anxiety portion, and now my mind is much more open about the capabilities of these meds, whereas before I thought it was a block to your higher power, and the sunlight of the spirit, now I’m glad my headaches are gone regardless. Actually the Doctor had suggested Lexapro, but they didn’t have it in generic, and therefore the insurance company changed my prescription, or rather made me call and get the Doctor to change the prescription, which in itself is news worthy. Who the fuck gives the insurance company of none doctors the ability and power to change my medications, solely based on cost. I mean, it’s really an outrage. They say Lexapro will have a generic within the year though, so I’ll just continue on Celexa, record the symptoms, and then compare once I switch over later on.

I am still glad I found a baseline before using them, but I mean, Post Interferon, meetings and step work just wasn’t killing the headaches like it killed the urge to drink early on for me. Everything happens for a reason I suppose.

– Jared Bryan Smith

Whitney Houston said “These drinks are watered down” in her last days…

Posted: February 18, 2012 in Uncategorized
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There’s not an alcoholic in the world who has gone past that lonely invisible line, that doesn’t know what kind of living hell her life had become at that moment. The moment the drink stops working, and you can’t imagine your life with or without alcohol. For me, and I chronicle this all very vividly and in detail in my book Hippopotamus Sea, My Viral sobriety, the drinks not only stopped getting me drunk, but they began to taste of charcoal, or maybe brimstone, because I do not exaggerate when  I say its the closest thing to hell I’ve ever experienced. Following those dire moments for me I hit multiple crossroads, a few more chances, a few mere suggestions to go into AA and my sister had a heart to heart little barrage of words with me. All of it was a divine message of warning though, and I bet Whitney got about that same level of attention from the same God who saved me, I mean hell, she did grow up singing in the choir. Man, 49 years old, and really who knows how long it had been for her with the drink not working? Earth people just have no clue what that statement, what those witnesses grasped. When an addict’s drug stops working, the relief is over, hell has just descended. Somehow, through hundreds of AA meetings, and prayer and stepwork, I made it out, but Whitney died in a bathtub a couple of days later, and I’m just grateful that didn’t happen to me… hell I don’t think I had hot water when I was getting sober. Maybe being poor is a blessing.

So I have lots of other news to report as well, I am loving the new job, though it’s tough, the environment is competitive, and I enjoy the haggling, and the negotiating, and there is a lot of room for upward mobility. Also too, the headaches, the brainfog headaches, from what I considered to be Post Interferon Syndrome, seem to finally have abated a good deal since getting on Celexa prescribed by my Neurologist, that I finally decided to take after kicking and screaming against prescription meds and especially mood altering drugs for so many years. I can’t believe that my depression was causing physical pain in my head for over 3 years post TX and it’s probably too soon to say that’s what it was, but damn it all to hell if I don’t feel remarkably better, and I’m not able to make my 100 calls, do 2 hours in the gym and still commute 3 hours a day, and still feel pretty good about life in general. I mean, that is some amazing progress considering the debilitating nature of these headaches and the magnitude and quantity of their overbearing presence. I’m just humbled and grateful and must redact everything I’ve ever really written about prescription meds in this blog. I mean I’m still glad I discovered a baseline, emotionally, and physically in my sobriety, but wow, this Celexa has literally cured the worst of my brain fog headaches, and I seem to be able to think more clearly as well, which again is just a very big deal for someone who was forgetting names of friends and simple math and I mean its just a really big deal. Weeks one and two on the stuff was quirky and I  think when I’d started Interferon way back when I tried it and couldn’t get through the anxiety of the first week or two, but when I broke through week two I felt great. I’m only hesitant to declare it a total cure because i still did get hit with a migraine on Thursday, but I mean thats one headache out of seven days compared to like 6 out of 7, and the migraines and the brain fog headaches are two totally different types, one you can work thru, but the brain fog ones, felt like the day after an interferon shot and I’ve experienced them consistently every since treatment which has sucked ass, brutal, and made work next to impossible.

So once again, I learn that the more I know the less I understand, but I will take it, I will take relief and the ability to work, and work hard at a job I enjoy any day of the week and thank God for my sobriety, and all my friends and family who helped me and or tolerated me as I went through the pain of the last few years. You get to the point where you don’t talk about it much because you are tired of hearing your own self bitch. I mean I lost jobs to this thing, probably lovers and friends as well, but such is life. I am glad I found something that manages the pain, and if you’re having Post Interferon Syndrome related headaches I highly recommend trying Celexa, 20 mgs has helped me considerably and I just wish I’d tried it sooner but my old school AA nature really resisted it as being “not sober” but the Big Book does state “we are not doctors” and they have no opinion on outside issues, I probably shouldn’t have been so judgmental about medications before I just felt like they would block the sunlight of the spirit, and create the urge to drink again, but that hasn’t been the case for me at all.

Life and sobriety continue to be learn as you go I suppose, and I’m just glad I found some relief, and now feel competent to keep my job, because after losing two sales jobs back to back due to this pain, I was really concerned I simply wouldn’t be able to perform, but I’m averaging more calls than the entire class of 15 they hired, and things are going great. I still miss the little chaos creating alcoholic I dated up here in the mountains, but I’ve been good about not calling or contacting her as well. Whats the point? I can’t date an active alcoholic no matter how much I want to, haha, but I guess I’m still just a little stunted in that area, better to be single than with the wrong one though. Such is life, live and learn.

Condolences for Whitney, her family the poor daughter, and of course all our men and women who’ve passed since this war began, because in case you hadn’t noticed we’re still losing people every week. In both Afghanistan and Iraq, where we most certainly do still have about 15000 “embassy personnel” and military contractors. Looks like things are bout to heat up there as well. I think by October we’ll be driving some tanks up to the doorsteps of those reactors in Iran and sending in demo teams to destroy every bit, we’ll prolly stay out of the cities, but Iran can’t be let to have nukes, and air power alone will just slow them down, so I think Obama will try and pull a patriotic rally right before the election with a ballsy tank maneuver and you know what, it might just work, and get him reelected. We shall see, as we say, more shall be revealed!

If you haven’t already done so please check out my book, the cartoons on Youtube and post http://www.books4free.com on your facebook page to spread the word! Thanks so much and have a great weekend!

Jared Bryan Smith

My fasting experiment…

Posted: January 10, 2012 in Uncategorized
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Well I only lasted 32 hours, but I mean the results were tangible. I became hungry. haha… no I was definitely amazed by the clarity of my prayers, by the meaning and depth of reading scripture and there was a lot to be said for fasting overall. I still am skeptical of Free Chapel though to be quite perfectly honest.

I went there yesterday to pray prior to going down to do some step work with a sponsee at the 1 pm and low and behold there were, I’d say, about 20 people there already kneeling and praying at the front of the church. However I couldn’t help but notice the feeling of the whole place just being a big TV set. There was no cross, no alter, no stain glass windows, just a huge stage. Then to my left I heard some of those folks talking in tongues. I pretty much decided to end my fast and eat a cheeseburger right then and there. It was weird, and there was no church leadership, or even anything remotely christian about the praying…. I guess I’m just a little too skeptical still.

All that skepticism aside, I can’t argue that the Bible mentions praying and fasting quite a bit, more than I’d ever acknowledged before in my life and I’m glad to have brought it to my spiritual tool kit. I noticed in my meditation Sunday night after I was able to stay a lot more focused than usual… but then again I hadn’t really meditated in a long time anyway. Still, it put things into perspective.

I was able to recall just how powerful the feelings from last year were, and though similar, how far a cry this new woman was, and how both were but a taste of what is to come. Clearly I am not ready to receive the love God has in store for me at this moment but that doesn’t mean I won’t be one day in the future. Just that last year wasn’t right, and and this girl wasn’t the right one either, to be ok with that, to be patient, and that really I should have never let someone quite so sick get quite so close to begin with. One more set of lies I can no longer trust in myself I suppose, that I can date an active alcoholic because I won’t be stupid enough to develop feelings for her… nix that theory. I am just that stupid and more. No, I can’t fix people is part of the lesson. So don’t try and date or make love to projects that need fixing. I have enough fixing of my own to deal with, I need not take on any more challenges.

But after mediating, and praying yesterday, that hole in my heart was literally gone. So I guess a couple of lessons learned, calling the ball earlier reduces the pain, or the length of the pain, and also, fasting and praying is a great way to sharpen your connection to your higher power at any time. It filled the God sized hole right up in just over a 24 hour time frame. Reminding me of how human and delicate and savage I really am, and how much I really do need God.

Our program of AA is a spiritual program of action and that is one of the things I really enjoyed about fasting, is that it was an action event. Unlike so much else in the Bible, and outside of our 12 steps, it is something we can do, take action towards, and immediately begin reaping the benefits, feeling the results. if ever I begin to doubt God again I know I can use this tool, not eating, to immediately begin to feel his presence and force my hand to begin communicating. It reminds me of that saying, if you feel God is no longer in your presence, “Who do you think moved?” By fasting I get back to God, and I mean in a hurry. I must have prayed two dozen times, on my knees in that 30 hour period and my mind was crystal clear.

Regardless of my skeptical nature, I truly can not argue that Fasting has added an arrow to my quiver that I won’t soon forget.

I am grateful that pain of loss left me, grateful I start a new job next week, and grateful that joy and happiness are in my heart. I wish that girl the best, and I will remain her friend if she should call upon me, but I will not allow myself to get sucked back into an alcoholic sick situation. I will stay sober, and hopefully one day she’ll want sobriety based on my example. I wrote multiple letters I can’t send promoting AA and our way of life, but upon talking to my sponsor, which I already damn well knew, that is not how we operate. We are a program of attraction not promotion, so we’ll just have to wait by the sidelines, and move on, if it were right omnipotent God would make it so. As I’ve said before “If it’s right nothing in the world you do can prevent it from happening and if it’s wrong, nothing in the world can force it.” It is what it is, and I’m just grateful I can accept that more easily 5 years in than I could when I first got sober.

Jared Bryan Smith

Natalie Cole’s Health Battle With Hepatitis C w/ Mary Hart on The Early Show… “That Interferon is really serious.”

Posted: October 21, 2011 in Uncategorized
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Great to see she is finally addressing her Hepatitis C. I wonder how many years total it lay dormant? What a hell of a disease. She walked around for 20 years just fine and then it hits her like a mack truck. Well I’m glad she’s speaking openly about it and doesn’t credit sloppy tattoo parlors like ole Gregg blames. Truth is one hell of a character trait these days, and Natalie seems to be facing things head on and without shame, and that is awesome. Also great news that she’s doing Interferon and not Ozone or Nitrus Oxide for Pete’s sake like Anthony Kiedis from Red Hot Chili Peppers, but actual Interferon like we all are told to do. I hope to hell she doesn’t suffer the post TX, or Post Interferon Syndrome so many of us are going through now. I blogged a bit about it on medhelp which is available via the link below, and basically as I state it seems to affect clear thinking, headaches, joint pain and the like. Nothing new, but still as far as I can tell being totally ignored by the medical community as a whole. And what’s good news for Interferon patients moving forward, is with Telapravir hopefully that number of people suffering from Post Interferon Syndrome will be even more dramatically reduced. It’s good news for people in general, but it doesn’t really help me or the others who are suffering extensively, from symptoms that are hard to prove, but exist in a multitude of us, as is reflected in this forum:

http://www.medhelp.org/posts/Hepatitis-C/Long-term-side-effects-of-interferon/show/866107

I just read someone state simply : “Had I known the fog Interferon would put me in, I would have made my peace with God and enjoyed what little time I had left.” Someone else stated, “Yes my husband beat HCV over 10 years ago but now lives in a constant state of depression.” Those are just in the last few handful of posts. I certainly don’t wish for Natalie Cole to experience any post TX symptoms as I have, but if she does, or if Steven Tyler or Gregg Allman did and spoke up about them, maybe somebody would listen.

On the forum it talks about the Mayo Clinic recognizing Post Interferon Syndrome as a real issue, but it was never documented, cited, ie proven. I would like to see real research done to see if it affects hormones, blood levels, immunity, etc. Everything seems to be out of whack for me and obviously we’re not imagining it if there are hundreds of people from all over the country explaining the same symptoms. I’m around 3.5 years out from Interferon and still wake up everyday with a massive headache, I mean, that is not normal. Perhaps Natalie Cole will experience some of those same issues and begin to be a voice for folks, for God knows nobody else has done it.

There is a Doctor who posted even in that Medhelp thread, but I reached out to her personally and she didn’t respond. Her explanation of side effects is stunning, it’s worth reading, but basically she talks about not being able to complete the multitasking she used to be so capable of and having to resign as a Doctor of Medicine. I mean, you would think she would have the leverage to get people to listen, but I guess you’re talking about a multi billion dollar pharma industry, and these guys have power. Pharma is the Crown Jewel of the American Industrial Empire, and I suppose they aren’t about to take down a multi billion dollar line of products, especially when no matter what our complaints, it’s better for public health to get rid of Hepatitis C, than it is to wait until the “cure” has less long term permanent side effects. For the greater good, better to cure it now, stop it’s spread, than worry about what that “cure” does to people’s brains, especially when on paper, and through standard blood work, it looks as though they are fine. Those permanent side effects are much more difficult to measure, in fact it would take comprehensive aptitude tests taken before and after, and that doesn’t really fall under the gastroenterology field, they would need to bring in Neurologists and maybe even Psychiatrists to really measure brain function before and after Interferon and again, it still wouldn’t be better for the public, greater good, than curing it, no matter what. Still, telling people, they will only suffer “flu like symptoms” for a 12 months, is a bald faced lie. If I’d known a fraction of what I know now, I’d have at least waited until it was a more pressing case of Hep C before starting Interferon. Now that we are here though, I just want to know if there is anything we can do to improve our state of mind moving forward. Hormones, steroids, vitamins, anything.

Sadly without a voice, I don’t believe a single study is being done to even qualify our issue as a valid one. It could all change in a New York Minute though, and I do read of lots of people who don’t suffer these symptoms. Maybe it was because I administered these shots myself for 48 weeks, maybe I overdosed a couple of times. Lord knows I’m an over achiever, and overdosed  a few times on the recreational stuff, though never significantly enough for death or a stomach pumping. Still perhaps my lack of health insurance and self-administering exacerbated the problem. I don’t know. Maybe it will clear after year 4 post Interferon. God I hope so, I really wish I didn’t get the headaches and brain fog. Maybe someone with credentials, or fame will give the syndrome a voice, and we will get studied and fixed. I don’t know, I’m gonna keep on keeping on, I didn’t get sober to bow out or give up, but this is certainly been challenging as hell, it’s persistence daunting.

And again, even with all that said, I am glad to be Hep C free. My liver enzymes were through the roof, and a friend of mine just had his come back after going through Interferon twice, once for a year, and once for a year and a half, and it’s come back. Now they think they’ll treat with Telaprevir. And he states he doesn’t get the brain fog, so it’s just weird. I’m glad it’s gone, and I’m glad he can treat now with Telaprevir with odds of 80% instead of 50%. God willing he’ll beat it, and God willing this fog and pain will fade away. I am grateful to be alive, I just wish more was being done to address the long term implications of Post Interferon Syndrome so many of us seem to be experiencing.

If you haven’t please check out my journey of sobriety, Hep C, and Interferon for free on http://www.books4free.com and of course on Amazon:

– Jared Bryan Smith

Laid Off… That sounds so much better than it really is.

Posted: August 19, 2011 in Uncategorized
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Getting laid, or jerking off, now that sounds at least moderately enjoyable… but being laid off, just blows. In sobriety I’ve now been laid off three times in less than 3 years. This never happened to me when I was out there drinking and drugging. Now mind you there are some details I’m leaving out. Sure, sure, I was told I am actually free to continue to work, but commission only. I don’t think my car payment or ex wife will accept such terms however, and therefore I’ve been looking for work all week long. I’m fortunate in that I do have a good solid ten years of recruiting experience under my belt and I’ve had a few nibbles.

I tell you also, the romantic notion of becoming a soldier continues to haunt my conscience. I have always romanticized the horrors of war. I have studied history, read dozens of books, and know academically how horrendous, monotonous, boring and terrifying war can be. I know the stats of double and triple amputees coming out of Afghanistan, especially those of Infantry, where I imagine myself going, and I know that this time last year we’d seen an increase of IED’s up to about 1000 and that this year that number is already at 1800 or almost double. It also seems they have something more potent taking helicopters out of the sky though nobody is about to admit that publicly. I know all these facts like the back of my hand, and yet I can’t escape the notion that I would love to serve, and to fight. I would love to fly helicopters into battle ultimately.

My record is such, bar fights and dui’s etc, that I don’t qualify for Security Clearance to be a medic or a pilot though, so the recruiter tells me I need a good year of good behavior to earn security clearance and then apply for Helicopter Pilot School. And my brain tells me no, but heart tells me yes. I pray for guidance, and I hear no voices, but when I think of the adventure while sitting in church, it’s like  thinking of the woman who slipped away, my heart pounds, adrenaline flows and chills radiate out from my spine through my bloodstream. I love the idea of it all. The journey.

Andrew Jackson once said “I was born in a storm, and a calm does not suit me.”

I know how he feels. I’m having a hard time getting motivated by mere corporate survival and sales goals as of late. Though I know the math is terrible, the odds dismal my age a huge obstacle, I can’t stop thinking I might be happier if I just followed my heart every once in a while instead of listening to my fact filled brain. I will continue to pray about I suppose.

I go back to Hemingway at war, and though I know I’m no Hemingway, you just can’t deny it would give a powerful subject to a voice I now have a lot of faith in. Also with 5k friends under my real name and about 2k friends under Jared Bryan Smith on facebook I could blog and post videos and picture from the war zone that would be mind blowing. Again, food for thought, just some of the things a grandiose alcoholic considers when his career gets sidelined yet again. We shall see.

-Jared Bryan Smith

 

Gregg Allman – Hepatitis C – Latest CNN Interview

Posted: July 14, 2011 in Uncategorized
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I’m too lazy to go look but I wonder if his albums sell under the huge multimedia Time Warner banner?

He STILL denies having gotten the drug through any kind of drug use, and even adds, “It doesn’t much matter how you got it, you got it.” And this is true, but MUCH more people get Hepatitis C now a days via needles and or sharing straws, which never occured to me while I was out there drinking and drugging, than do by using dirty tattoo needles. Ironically, I just returned from Macon GA and for some reason I believe the bucket story now. That probably is exactly how he got it, and ohhh how disgusting.

It is still humble and cool of him to come out and speak about Hep C, and that he’d gotten a liver transplant of a 29 year old liver, and even more shocking I thought, was that the CNN announcer mentions that he still has Hep C, and that he is living with it. So he was not cured of the virus at all? I wonder if they will try and run him through the new Telaprevir with the higher success rates. I hope so, I hope they can clear him of the virus as they did me, but as Dr. Hutchinson from Duke told me “the young do better than the old.” I wonder what his prognosis is for Interferon with the new drugs, and if the liver transplant makes it impossible to go under Interferon or somehow prevents the full blown chemo like side affects? Still, I may have been a little harsh when I blogged about Gregg before, denying any drug use and stating that he’d gotten it from dirty tattoo needles. In the big scheme of things, it doesn’t really matter how you get it, none of us invented the disease, it matters what you do with it, and if you man up and fight it, quit drinking, and persevere through all the long odds to beat the nasty little beat me down.

Still, I’d be happier if he’d use his name to go out and promote free Interferon use with Telaprevir to all, I mean, they shortened the length of time, doubling the odds, but also doubling the cost. Most of us don’t have Rock Star retirement plans. And it’s the kind of thing that with a concentrated government effort, they could eradicate just like polio, instead of just bilking people left and right.

Let me tell you too, if I find out he’s working for Roche or Merck and this was a publicity stunt for some new medication they are charging triple for, and he still couldn’t admit he’d gotten it using needles, then I’ll be just as irritated. Or to find out his rock star royalty got him the transplant liver faster, that would be just as aggravating. On this one it is probably better I don’t do any research. For now, Gregg has my compassion and sympathy and even my thanks for doing this interview, regardless of if it’s connected to his record sales, and/or paid pharma giants, more than likely even if all that was true, his agent just tugged his heart strings and Gregg was just doing what he thought was right.

He’s still one of the baddest musicians ever to walk the planet. I pray his recovery from Hep C and his transplant stays strong and that he’s able to go through the new Interferon treatments with telaprevir and beats it.

-Jared Bryan Smith

TheAddictedProject.com Publishes My 1st Interview!!! Thanks Ashley, Josh and friends!!

Posted: July 4, 2011 in Uncategorized
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http://www.theaddictedproject.com/#!articles

Very cool stuff in deed, though I of course am now over-analyzing everything I said, and didn’t say, haha. It is great to have any kind of recognition at all though and I’m very humbled that anyone would take the time at all to interview me for my thoughts on writing, the book and life in general. I’m grateful, humbled and happy all in the same breath.

It’s hard to believe that 5 years ago TO THIS DAY, I was in the process of going from the top floor of the Ritz Carlton, opening the curtains to see the whites in the eye balls of the pilots of the black helicopters literally just outside my window, descending into madness to ultimately land in the looney bin for my VERY first time. I mean, that is fucking incredible. 5 y ears later I’m an author, VP of Sales for a mobile marketing company with 5 direct reports and an incredible family life. 5 years ago my family were trying to get me in one place so they could all three sign me into an insane asylum, today, I’m invited to have BBQ at my uncles and play with the toddlers.

Miracles abound in this program of recovery, in this incredible life in general.

Sunday’s ministry by Andy Stanley was amazing as well, loving kindness, making a difference not making a point, treating all those outside the faith with much faith and grace and a little salt, relates so closely to my view of christianity that it is remarkable. I really want to get my book in his hands at some point as we have seen eye to eye, in actually reading the words of Christ and trying to do what they say, not what organized religion says we should do, but actually acting like good Christians, being kind, turning the cheek, practicing forgiveness. If you didn’t catch this Sunday’s sermon or have never heard an Andy Stanly sermon, do yourself a favor and go check it out, this Sunday’s was one of the best ones I’ve ever seen him tell, and it was filled with loving tolerance of others, as well as being a religion of attraction rather than promotion, which is how we got out from under the thumb of the Romans almost 2000 years ago. He talks about the pharisees being the only ones Jesus was most consistently against, because of all of their rules and their hypocrisy. Even as an just an intellectual non-christian this Sundays was a good lesson for anyone to hear. You can always catch up on his messages via the links below, usually they are a week behind though, so make sure you note the dates. July 3rd is the one that really moved me the most in the last year of going or so and is a valuable lesson for christians and non christians alike!

Sundays was titled : Separation of Church & Hate.

Most rational, prudent expression of living by example I’ve heard in a long time, and definitely worth hearing.

http://www.buckheadchurch.org/messages/download

http://www.buckheadchurch.org/messages

http://www.youtube.com/northpointministries

I’m so grateful for my recovery today. Grateful for Josh and Ashley and everyone at TheAddictedProject.com and I wish them all the best in their Publishing adventures, and am indebted to them if they ever have any writing needs at all.

Happy 4th of July everyone.

Respectfully,

Jared Bryan Smith

“The weak can never forgive. Forgiveness is the attribute of the strong.” Mahatma Gandhi

Posted: June 29, 2011 in Uncategorized
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Woke up feeling refreshed and recharged, better than I have in several days. Probably because I worked out a small feud with someone whom I really never had anything against to begin with, but whom I did repeat a nasty rumor I’d heard, thus inciting a grudge that lasted way longer than it should have, and had farther reaching ramifications than I could have ever imagined. We made amends to each other and damn if I don’t feel 10 times better for it for my part.

Reminded me of a christian value that I wish I had followed earlier, because it really did bring an instant peace and calm into my life as soon as we were done talking.

Matthew 18:15 “Moreover if thy brother shall trespass against thee, go and tell him his fault between thee and him alone: if he shall hear thee, thou hast gained thy brother.”

Pretty moving stuff… and just a few sentences later:

Matthew 18:19 “I tell you that if two of you on Earth agree about anything you ask for, it will be done for you by my Father in Heaven. for where two or three come together in my name, there I am with them.”

Well that parable to me, sums up the magic of an AA meeting perfectly. For years I would try to get sober all by myself and never get more than 2 weeks, tops, and then my very first half ass try into AA, where two or more people are trying to accomplish the same goal, and lo and behold I was able to stay sober for a month… and that was without getting a sponsor or working any steps… The forgiveness thing, for me anyway, is more in the Masters / Phd realm of AA, as my anger, once up is really hard to get back down… but I don’t have to think my way into right action, I have to act my way into right thinking, and the act of forgiveness, humility and an open conversation with my brother in sobriety, brought about the forgiveness I wouldn’t have thought possible.

And even if you must discount the religious mumbo jumbo, I found science to back the claims as well, the positive affects of forgiveness transcend even religion, and stab deep into the heart of science as well.

“Dr. Robert Enright from the University of Wisconsin–Madison founded the International Forgiveness Institute and is considered the initiator of forgiveness studies. He developed a 20-Step Process Model of Forgiveness.[4] Recent work has focused on what kind of person is more likely to be forgiving. A longitudinal study showed that people who were generally more neurotic, angry and hostile in life were less likely to forgive another person even after a long time had passed. Specifically, these people were more likely to still avoid their transgressor and want to enact revenge upon them two and a half years after the transgression.[5]

Studies show that people who forgive are happier and healthier than those who hold resentments.[6] The first study to look at how forgiveness improves physical health discovered that when people think about forgiving an offender it leads to improved functioning in their cardiovascular and nervous systems.[7] Another study at the University of Wisconsin found the more forgiving people were, the less they suffered from a wide range of illnesses. The less forgiving people reported a greater number of health problems.” 

I am glad it is behind me, once and for all, I truly wish my brother in arms, traveler on Earth with the same disease of addiction as me, the best sobriety has to offer.

Jared Bryan Smith

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