Posts Tagged ‘Hepatitis’

As most alcoholics, I am often childish, oversensitive, and grandiose.

I’ve spent a lot of time wondering if writing this book was even a good idea, and I constantly worry about the harm I’ve done in being so brutally honest about my life, and especially in my sobriety, but ultimately I always come back to if I’m honest,  I have nothing to fear. Even with that knowledge, I am often saddened by the misunderstandings I may have inadvertently caused, or complications my gut level honesty may have arisen. A friend of mine has a bumper sticker that reads “First do no harm.” Which is the beginning of the Hippocratic Oath, which Doctors take, but I take it personally almost every time I read it. I really never intended on ever hurting anyone, especially anyone I loved. But a lot of unexpected, uncharted things happen when you write a book, or when you write in general. It is not for the faint of heart. You open up a vein and bleed into a keyboard, then wait as everyone dissects and examines the blood telling you just what’s wrong with it all, just what blood borne diseases your carrying around and how it affects them somehow, who choose to read it. It is often times more pain that I would have imagined it would be. I’m not good at criticism, constructive or otherwise.

Occasionally I get a note that makes it all worth while though. A week or so  ago I heard from a friend that had cleared Hepatitis C as an early responder, and that was definitely one of those days. He had read my book, and so that was definitely uplifting, but this review that a perfect stranger left on the blog wall yesterday, is absolutely the best one I’ve received in a long time.

“I have read three books on recovery in the last 2 months. The other 2 by well known authors.

YOUR BOOK spoke to me.. The other 2 seemed like a lot of dribble.

After all their words maybe, just maybe… in the very end did they say anything  to me.

YOUR book touched my mind and my soul   from the very first sentence..

Thank you and please keep writing !! Your amazing.

cc golem ”

Thanks so much CC! I really do appreciate it. For all I’ve lost in writing this book, knowing that a few people have been moved by the story is enough to solidify leaving the book up.

In the process of self publishing I’ve learned a lot about the mechanics of the publishing industry. I am tormented by the thought of taking it all down and just walking away from it all. I think I am probably not the first writer to have these thoughts. I wonder if it’s a good idea for me to control the entire process. I know there are parts of the process that could be handled better by others. For instance, I feel bad pimping my own pain. Having a literary agent would help with that. I feel terrible publicizing the book title on my own in different forums, and after just a few negative comments from overposting, I stopped all together. Then I get bitter at the lack of commercial success, and wonder how many women I’ve known just in the last year who’ve been pushed away by the content or their misunderstanding of what it means to be cured of Hep C, and I wonder, should I just take it all down?

And then I get a decent review, and I remember, that I didn’t write it for glory, or vanity, but to help other struggling alcoholics, or better yet, specifically people facing the daunting challenged of Hepatitis C. There are more options than 4 years ago when I went through it, the pain and duration of Interferon has been cut in half using Telaprevir or Boceprevir Telaprevir, but of course as the pharmaceutical industry is apt to do, since it’s half the time, it’s twice the cost, and most of us suffering from Hepatitis C, weren’t exactly on the tail end of financial windfalls, so the odds can still seem insurmountable, I’m sure. But at every corner in my journey of sobriety, God was there, every step of the way, I knew what the right thing to do was, and I was rewarded every time I took the next right step. Today, at 4.5 years sober the next right thing is just leaving the book and the blog up, regardless of personal pain or loneliness it may cause.

The occasional reader finds inspiration and that must be why God so compelled me to write it.

Thanks again CC, I appreciate the kind words more than you know. Please do me a huge favor and leave the reviews on Smashwords as well, which the link can be found under the picture of the book. I have a ton of good ones on Amazon but Smashwords is a bit bare for reviews. Thanks again so much!

– Jared Bryan Smith

Researching the three I know of, Steven Tyler, Anthony Kiedis, and Pam Anderson, I was glad to find at least Steven wasn’t babbling about some pie in the sky treatment like Ozone, but had in fact gone through 11 months of Interferon treatment and was actually free of the virus in his bloodstream, or otherwise cured. It was in this article from September 2006 in people magazine.

Steven Tyler Reveals Hepatitis C Battle

Steven Tyler Reveals Hepatitis C Battle | Steven Tyler

Steven Tyler

David “Bagel” Ungar/FilmMagic

Aerosmith frontman Steven Tyler has revealed that he was diagnosed with hepatitis C three years ago, and recently went through 11 months of treatment.

“I’ve had hepatitis C for a long time, asymptomatic,” Tyler tells Access Hollywood in a new interview set to air Tuesday. “And I talked to my doctor … and he said now is the time and it’s 11 months of chemotherapy. So I went on that and it about killed me.”

Tyler, 58, says he’s much better after undergoing the treatment. “It is nonexistent in my bloodstream as we speak, so it’s one of those few miracles in doctoring where it’s like a complete cure,” says Tyler.

Hepatitis C is a liver disease spread by contact with the blood of an infected person, according to the Web site for the Centers for Disease Control. Many people who have hepatitis C show no symptoms of the disease.

Tyler also says the treatments, which included taking the drug interferon, were hard in his marriage to his wife of 17 years, Teresa, whom he split from earlier this year.

“I had a little problem at home, to say the least,” he says. “I would run upstairs at night, you know, to put the kids asleep and wake up at 3 in the morning with a nosebleed you know, just passed out from the interferon, the treatment.”

After keeping quiet about the disease for so long, Tyler says he’d like to share his knowledge about it with others.

“I may go on Oprah and talk about this,” he says. “I mean you know it’s just one of those things… it’s one of those things people don’t speak about it, but it is treatable.”

In March Tyler announced he planned to undergo surgery for an undisclosed medical condition, which forced Aerosmith to cancel its remaining tour dates. At the time, his rep said that doctors had advised the singer “not to continue performing to give his voice time to recover.”

So that was cool to find out. It made me want to find more about Anthony Kiedis and Pam Anderson. I found an excerpt from Anthony Kiedis’s book Scar Tissue, but man if I just don’t believe a word of it:

But the doorbell interrupts my reverie. A few minutes later, a beautiful young woman enters the living room carrying an exquisite leather case. She opens it and begins to set up her equipment. Her preparations complete, she dons sterile rubber gloved and then sits next to me on the coach.

Her elegant large glass syringe is handcrafted in Italy. It’s attached to a spaghetti — shaped piece of plastic that contains a small micro – filter so no impurities will pass into my blood stream. The needle is a brand new, completely sterilized microfine butterfly variant.

Today my friend has misplaced her normal medical tourniquet, so she pulls off her pink fishnet stocking and uses it to tie off my right arm. She dabs at my exposed vein with an alcohol swab, and then hits the vein with the needle. My blood come oozing up into the spaghetti – shaped tube, and then she slowly pushes the contents of the syringe into my bloodstream.

I immediately feel the familiar weight in the center of my chest, so I just lie back and relax. I used to let her inject me four times in one sitting, but now I’m down to two syringes full. After she’s refilled the syringe and given me my second shot, she withdraws the needle, opens a sterile cotton swab, and applies pressure to my puncture wound to for at least a minute to avoid bruising or marking on my arms. I’ve never had any tracks from her ministrations. Finally, she takes a little piece of medical tape and attaches the cotton to my arm.

Then we sit and talk about sobriety.

Three years ago, the might have been China white heroin in that syringe. For year and years, I filled syringes and injected myself with cocaine, speed, Black Tar heroin, Persian heroin, and once even LSD. But today I get my injections from my beautiful nurse, whose name it Sat Hari. And the substance that she injects into my bloodstream is ozone , a wonderful – smelling gas that has been legally used in Europe to treat everything from strokes to cancer.
I’m taking ozone intravenously because somewhere along the line, I contracted hepatitis C from my drug experimentation. When I found out that I had it, sometime in the early ‘90s, I immediately researched the topic and found a herbal regimen that would cleanse my liver and eradicate the hepatitis. And it worked. My doctor was shocked when my second blood test came up negative. So the ozone is a preventative step to make sure that pesky hep C virus stays away.

I took years and years of experience and introspection and insight to get to the point where I could stick a needle into my arm to remove toxins from my system as opposed to introducing them. But I don’t regret any of my youthful indiscretions. I spend most of my life looking for the quick fix and the deep kick. I shot drugs under freeway off- ramps with Mexican gangbangers and in thousand – dollar – a – day hotel suites. Now I sip vitamin – infused – water and seek out wild, as opposed to farm raised, salmon.

For twenty years now, I’ve been able to channel my love for music and writing, and tab into the universal slipstream of creativity and spirituality, while writing and performing our own unique sonic stew with my brothers, both present and departed, in the Red Hot Chili Peppers. This is my account of those times, as well as the story of how a kid was born in Grand Rapids, Michigan, migrated to Hollywood and found more than he could handle at the end of the rainbow. This is my story, scar tissue and all.”

“Scar Tissue” is an heartrending story of the life of Anthony Kiedis and the Red Hot Chili Peppers and is an inspiring movement for the spiritual creating of making music and finding the ride tunes and the struggles of a rock band in the music industry.
So yeah, I just have a hard time accepting that Anthony Kiedis has this European cure all, but Steven Tyler had to do a tough as nails 11 month long Interferon regimen that took it’s toll on his marriage, and not to mention the hellish side effects of headaches, exhaustion, and feeling about 50 IQ points lower than where we started. I mean couldn’t Steven Tyler have afforded the same treatment? Yes, of course he could, and he must have researched it, and probably even talked to Anthony about it, only he didn’t go down that road….probably because Anthony read him a horoscope or something fruity and Steven decided to go with something more clinical proven…lets see what I can find a bout Pamela Anderson and her Hep C battle.

“Playboy girl Pamela Anderson has taken up the cause to promote awareness about Hepatitis.

The former ‘Baywatch’ star was diagnosed with liver disorder way back in 2001 after she contracted it through a shared tattoo needle but feels there is nothing to feel ‘embarrassed’ about the condition, The People reported.

The 43-year-old star controls the infection with medical help but personally wants to raise awareness so that other Hepatitis victims do not endure it.

“I’ve had liver biopsies. I get checked every single year, my doctor told me just keep doing what you are doing. I also have the kind that’s easiest to control. There is no cure for it, so the important thing is to encourage people to get tested and not be ashamed. People get embarrassed as you get it from blood-to-blood contact, but it is not just junkies who have it,” said Pamela Anderson.”

Well, I don’t know what I expected. Poor Pam, she is just a blonde bimbo out of Hollywood with her best years behind her. Lol, she’s dead wrong though, it is curable, and her Gastreoentologist has outdated information. Of these three Steven Tyler seemed to have his eye on the ball the most. You know what is intriguing though, is the fact that 3 heavy weight celebrities all received different medical advice. I mean you would think, paying top dollar out west in LA, these three would receive the same fucking consensus but no, all three get different advice, and then of course Anthony called the psychic hotline for a consultation, but still. Nobody laid it out for them in no uncertain terms, what is they have, what they are dealing with, and what is the best way to cure it and/or treat it. Goes to show you that you have to do your own research and take everything with a grain of salt. I’m glad my Doc here in Atlanta, Dr. Hersch, told me it was curable, through Interferon, and that the young do better than the old. I mean, poor Pam sounds like she’s being told to wait to treat it until it’s a problem, but my understanding from Dr. Hutchinson out of Duke, was that the young seem to be on the better side of the 50/50 early responders side, so then, that advice for Pam would be terrible. Sure, maybe they come up with something more effective and less harmful long term than Interferon, but hell, maybe they don’t, and she begins treatment after cirrhosis has set in, and then bam, bad luck Pam, you’re on the wrong side of the 50/50, you don’t respond to treatment, you have a year to live. Wow, that would really suck, and it would all be due to the different kinds of medical advice being offered to these three medically insured celebrities. Jesus, I mean, if these A listers (maybe B) all get different varying medical advice, what a fucking miracle I got good advice, without health insurance as a no name kid out of Atlanta. I must remember to count my many blessings… and pray that Anthony and Pam don’t realize they were wrong way to late.

Please take a moment to read about my average man’s journey through insanity, addiction, Hep C, Interferon, and AA on http://www.books4free.com and check out the strong reviews on amazon at:

-Jared Bryan Smith

Seriously, if there was any room in that coffin I’m sure she’d be turning in it. We were very much strategically brought up in the southern manor of giving off the appearance of normalcy, even if child abuse, domestic violence, and alcoholism was the prevailing wind inside the house, you’d better had a good cover story when you left the home front. Today, I am an open book, and proud of it. But boy would mama be upset that I’d made it to the top of the list of all Hep C book listed on Amazon. What a dreadful shame. I can literally hear her southern drawl “But JB why would you want people to know that about you.” Haha, because mom, I’m cured of it, and hopefully somebody somewhere will find solace and comfort in that fact. She would have had a hard time arguing that, as she was a good and decent christian woman, just a little preoccupied with social status and the appearance of the status quo. Ultimately the conversation would have ended with “Well, at least you had the good sense to use a pen name.”  haha….

That wasn’t my good sense, I would have much rather written it under my actual name, but through years of trial and error in following my own counsel I decided to allow my sponsor and attorney have their way with that one. The 11th tradition states of course that we must be anonymous in press, radio and films, and therefore I am, regardless of how many Glenn Blecks and the like out there aren’t. It’s difficult though, promoting a book under a pen name.

That being said, we are still well under the 100 books sold goal. Hovering around 50. I had hoped the funny ass cartoons about AA relationships would make people curious about the book but that too hasn’t generated too many book sales. Oh well, I am pretty happy with the new ranking under Hepatitis.

Thanks again for all the grassroots support people, making the number one slot on the Hepatitis C list on Amazon is a big deal even if it’s only taken 50 books to get there! Hope we stay at the top of the list for a while!

Thanks again and I hope everyone enjoys their Christmas!

-Jared Bryan Smith