Posts Tagged ‘Liver Transplant’

I’m too lazy to go look but I wonder if his albums sell under the huge multimedia Time Warner banner?

He STILL denies having gotten the drug through any kind of drug use, and even adds, “It doesn’t much matter how you got it, you got it.” And this is true, but MUCH more people get Hepatitis C now a days via needles and or sharing straws, which never occured to me while I was out there drinking and drugging, than do by using dirty tattoo needles. Ironically, I just returned from Macon GA and for some reason I believe the bucket story now. That probably is exactly how he got it, and ohhh how disgusting.

It is still humble and cool of him to come out and speak about Hep C, and that he’d gotten a liver transplant of a 29 year old liver, and even more shocking I thought, was that the CNN announcer mentions that he still has Hep C, and that he is living with it. So he was not cured of the virus at all? I wonder if they will try and run him through the new Telaprevir with the higher success rates. I hope so, I hope they can clear him of the virus as they did me, but as Dr. Hutchinson from Duke told me “the young do better than the old.” I wonder what his prognosis is for Interferon with the new drugs, and if the liver transplant makes it impossible to go under Interferon or somehow prevents the full blown chemo like side affects? Still, I may have been a little harsh when I blogged about Gregg before, denying any drug use and stating that he’d gotten it from dirty tattoo needles. In the big scheme of things, it doesn’t really matter how you get it, none of us invented the disease, it matters what you do with it, and if you man up and fight it, quit drinking, and persevere through all the long odds to beat the nasty little beat me down.

Still, I’d be happier if he’d use his name to go out and promote free Interferon use with Telaprevir to all, I mean, they shortened the length of time, doubling the odds, but also doubling the cost. Most of us don’t have Rock Star retirement plans. And it’s the kind of thing that with a concentrated government effort, they could eradicate just like polio, instead of just bilking people left and right.

Let me tell you too, if I find out he’s working for Roche or Merck and this was a publicity stunt for some new medication they are charging triple for, and he still couldn’t admit he’d gotten it using needles, then I’ll be just as irritated. Or to find out his rock star royalty got him the transplant liver faster, that would be just as aggravating. On this one it is probably better I don’t do any research. For now, Gregg has my compassion and sympathy and even my thanks for doing this interview, regardless of if it’s connected to his record sales, and/or paid pharma giants, more than likely even if all that was true, his agent just tugged his heart strings and Gregg was just doing what he thought was right.

He’s still one of the baddest musicians ever to walk the planet. I pray his recovery from Hep C and his transplant stays strong and that he’s able to go through the new Interferon treatments with telaprevir and beats it.

-Jared Bryan Smith

Gregg Allman was always one of my favorite musicians, and I used to love getting drunk and high going to Allman brothers shows. Recently I found out he too was a Hep C survivor and had actually had a liver transplant done as well. This article I found on the internet though, is fucking laced with inconsistencies about Hep C, treatment, Interferon, and the like, even calling Hep C an STD which it is clearly not. I have first hand proof that it isn’t, having knocked up a woman years and years ago while still in my active addiction and disease, who then had an abortion, but never got the Hep C that I was carrying back then, thank God I’ve been cleared of it. But surely if it was an STD it would have spread during the conception of a child, but it didn’t. My liver doctor told me of multiple cases of man and wife being married for 20-30 + years and not spreading the virus via sex, and yet major news outlets like CNN can still report it as an STD, just blatantly disregarding facts, and common accepted truths in the medical community. Hell even the AMA took it off the list of STD’s a few years back, and here is all they say about it:

“HCV is transmitted primarily through large or repeated direct percutaneous exposures to blood. In the United States, the relative importance of the two most common exposures associated with transmission of HCV, blood transfusion and injecting-drug use, has changed over time. Blood transfusion, which accounted for a substantial proportion of HCV infections acquired >15 years ago, rarely accounts for recently acquired infections although the risk is not zero. In contrast, injecting-drug use consistently has accounted for a substantial proportion of HCV infections and currently accounts for 60 percent of HCV transmission in the United States and a high proportion of infections continue to be associated with injecting-drug use.”

There article is completely devoid of any STD talk because it is proven not to be transmitted via semen, saliva, or other fluids, only blood…

But because it was mislabeled in the beginning of it’s discovery, the rumor and confusion persists, and even educated nurses will call it an STD, when it clearly isn’t:

Here are several other links basically stating the exact same facts.

http://www.ncbi.nlm.nih.gov/pubmed/15128350

http://qjmed.oxfordjournals.org/content/92/9/505.abstract?maxtoshow=&hits=10&RESULTFORMAT=&fulltext=Lack+of+evidence+for+the+heterosexual+transmission+of+hepatitis+C&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT

And yet still, a CNN reporter and presumably an editor fuck it up as recently as last summer while reporting on Gregg Allman’s case:

CNN by Deborah Mitchell

Hepatitis C, a liver disease in which the organ become inflamed and dysfunctional, destroyed Gregg Allman’s liver, making him a candidate for a liver transplant. The 62-year-old rock and blues legend underwent the surgical procedure at the Mayo Clinic in Jacksonville, Florida.

Individuals can get hepatitis C through contact with an infected person’s blood. This can occur in a variety of ways, such as being born to a mother who has the disease, having sex with an infected individual, being tattooed or pierced with an unsterilized needle that was used on an infected person, sharing drug needles with an infected individual, experiencing an accidental needle stick from a needle that was used on an infected person, or using an infected person’s toothbrush or razor.

Most people do not experience symptoms of hepatitis C until the virus has caused damage to the liver, which can take ten or more years to occur once the infection sets in. Symptoms may include jaundice (yellowish eyes and skin), swollen stomach or ankles, diarrhea, upset stomach, tiredness, nausea, weakness, loss of appetite, dark yellow urine, weight loss, abnormally long bleeding times, and the development of spiderlike blood vessels on the skin.

Allman began treatment for chronic hepatitis C in late 2007, and his doctors recommended a liver transplant because his liver had suffered chronic damage. Most hepatitis C infections become chronic, according to the National Institute for Diabetes and Digestive and Kidney Diseases. Without treatment, chronic hepatitis C can cause cirrhosis (scarring of the liver), liver cancer, and liver failure.

Hepatitis C is not treated unless it becomes chronic. A combination of drugs, peginterferon and ribavirin, is usually used to help slow or stop the virus from damaging the liver. Peginterferon is administered by injection once a week while ribavirin is taken daily by mouth.

According to the National Organ Procurement and Transplantation Network (OPTN), which is operated by United Network for Organ Sharing, approximately 6,500 liver transplants have been performed each year in the United States. More than 15,000 men, women and children are on a waiting list for a donated liver. The details of each candidate’s condition are confidential, although the OPTN can answer general questions about its transplant policy and process.

When chronic hepatitis C results in liver failure, a liver transplant is typically necessary, as occurred in Allman’s case. Drug treatment typically continues after transplantation because hepatitis C usually returns despite surgery.

SOURCES:
CNN, June 23, 2010
National Institute for Diabetes and Digestive and Kidney Diseases
National Organ Procurement and Transplantation Network

So yeah, good work Deborah, way to continue to misrepresent and promote an incorrect stereotype, and kudos CNN on letting it slide.

As for Gregg Allman, you amazing guitarist and hero to so many southerners and music fans out there, why come up with this bullshit story? You sing about heroin, we know you were an addict, we aren’t fucking morons. You could have been so helpful to so many people by stating exactly what happened to you, your struggle with Hepatitis C, your liver transplant and exactly how you got it, but instead of manning up and just admitting you were a junkie, you give the world this crap ass cop out:

“Gregg Allman was diagnosed with Hepatitis C in 2007; he suspects he was infected by a dirty tattoo needle. Allman had been on a donor list since 2008.

Look Gregg, I know getting Hep C isn’t exactly prestigious, but who gives a shit, you’re a fucking rock star. Now that you’ve beaten it, how about it? Tell us how Interferon was? Are you still suffering from the after effects like so many of us are? Are you achy, fatigued constantly with headaches plaguing you every other day, sometimes day in/day out for weeks on end? Do you have brain fog, was your creativity affected? We fucking need a voice Gregg, and you and Steven Tyler just brush it off completely. Worse yet is Anthony Keidis and Keith Richards who claim to have beaten it with good luck and charm, and Anthony rambles on about Ozone and some magical fairy dust or gas, but the rest of us went through hard as hell Interferon treatment, and many of us are still suffering from long term effects of it… the worst of which for me is the brain fog. Are you Gregg? Steven? Or do you just feel fine? Inquiring minds would love to know, cause we could really use a voice. The pharmaceutical industry thinks they’ve got a cure, but may I remind you of the Hippocratic Oath. First do no harm. I am in constant chronic pain, and though Hep C free, that sure as fuck feels like harm. What about you Gregg? I am glad you got your liver and have beaten the disease, but come on man, step up to the plate, there are millions suffering, and you could be a really big inspiration to people. Let us know how you’re really doing.

-Jared Bryan Smith