Posts Tagged ‘Post Interferon Side Effects’

Whitney Houston said “These drinks are watered down” in her last days…

Posted: February 18, 2012 in Uncategorized
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There’s not an alcoholic in the world who has gone past that lonely invisible line, that doesn’t know what kind of living hell her life had become at that moment. The moment the drink stops working, and you can’t imagine your life with or without alcohol. For me, and I chronicle this all very vividly and in detail in my book Hippopotamus Sea, My Viral sobriety, the drinks not only stopped getting me drunk, but they began to taste of charcoal, or maybe brimstone, because I do not exaggerate when  I say its the closest thing to hell I’ve ever experienced. Following those dire moments for me I hit multiple crossroads, a few more chances, a few mere suggestions to go into AA and my sister had a heart to heart little barrage of words with me. All of it was a divine message of warning though, and I bet Whitney got about that same level of attention from the same God who saved me, I mean hell, she did grow up singing in the choir. Man, 49 years old, and really who knows how long it had been for her with the drink not working? Earth people just have no clue what that statement, what those witnesses grasped. When an addict’s drug stops working, the relief is over, hell has just descended. Somehow, through hundreds of AA meetings, and prayer and stepwork, I made it out, but Whitney died in a bathtub a couple of days later, and I’m just grateful that didn’t happen to me… hell I don’t think I had hot water when I was getting sober. Maybe being poor is a blessing.

So I have lots of other news to report as well, I am loving the new job, though it’s tough, the environment is competitive, and I enjoy the haggling, and the negotiating, and there is a lot of room for upward mobility. Also too, the headaches, the brainfog headaches, from what I considered to be Post Interferon Syndrome, seem to finally have abated a good deal since getting on Celexa prescribed by my Neurologist, that I finally decided to take after kicking and screaming against prescription meds and especially mood altering drugs for so many years. I can’t believe that my depression was causing physical pain in my head for over 3 years post TX and it’s probably too soon to say that’s what it was, but damn it all to hell if I don’t feel remarkably better, and I’m not able to make my 100 calls, do 2 hours in the gym and still commute 3 hours a day, and still feel pretty good about life in general. I mean, that is some amazing progress considering the debilitating nature of these headaches and the magnitude and quantity of their overbearing presence. I’m just humbled and grateful and must redact everything I’ve ever really written about prescription meds in this blog. I mean I’m still glad I discovered a baseline, emotionally, and physically in my sobriety, but wow, this Celexa has literally cured the worst of my brain fog headaches, and I seem to be able to think more clearly as well, which again is just a very big deal for someone who was forgetting names of friends and simple math and I mean its just a really big deal. Weeks one and two on the stuff was quirky and I  think when I’d started Interferon way back when I tried it and couldn’t get through the anxiety of the first week or two, but when I broke through week two I felt great. I’m only hesitant to declare it a total cure because i still did get hit with a migraine on Thursday, but I mean thats one headache out of seven days compared to like 6 out of 7, and the migraines and the brain fog headaches are two totally different types, one you can work thru, but the brain fog ones, felt like the day after an interferon shot and I’ve experienced them consistently every since treatment which has sucked ass, brutal, and made work next to impossible.

So once again, I learn that the more I know the less I understand, but I will take it, I will take relief and the ability to work, and work hard at a job I enjoy any day of the week and thank God for my sobriety, and all my friends and family who helped me and or tolerated me as I went through the pain of the last few years. You get to the point where you don’t talk about it much because you are tired of hearing your own self bitch. I mean I lost jobs to this thing, probably lovers and friends as well, but such is life. I am glad I found something that manages the pain, and if you’re having Post Interferon Syndrome related headaches I highly recommend trying Celexa, 20 mgs has helped me considerably and I just wish I’d tried it sooner but my old school AA nature really resisted it as being “not sober” but the Big Book does state “we are not doctors” and they have no opinion on outside issues, I probably shouldn’t have been so judgmental about medications before I just felt like they would block the sunlight of the spirit, and create the urge to drink again, but that hasn’t been the case for me at all.

Life and sobriety continue to be learn as you go I suppose, and I’m just glad I found some relief, and now feel competent to keep my job, because after losing two sales jobs back to back due to this pain, I was really concerned I simply wouldn’t be able to perform, but I’m averaging more calls than the entire class of 15 they hired, and things are going great. I still miss the little chaos creating alcoholic I dated up here in the mountains, but I’ve been good about not calling or contacting her as well. Whats the point? I can’t date an active alcoholic no matter how much I want to, haha, but I guess I’m still just a little stunted in that area, better to be single than with the wrong one though. Such is life, live and learn.

Condolences for Whitney, her family the poor daughter, and of course all our men and women who’ve passed since this war began, because in case you hadn’t noticed we’re still losing people every week. In both Afghanistan and Iraq, where we most certainly do still have about 15000 “embassy personnel” and military contractors. Looks like things are bout to heat up there as well. I think by October we’ll be driving some tanks up to the doorsteps of those reactors in Iran and sending in demo teams to destroy every bit, we’ll prolly stay out of the cities, but Iran can’t be let to have nukes, and air power alone will just slow them down, so I think Obama will try and pull a patriotic rally right before the election with a ballsy tank maneuver and you know what, it might just work, and get him reelected. We shall see, as we say, more shall be revealed!

If you haven’t already done so please check out my book, the cartoons on Youtube and post http://www.books4free.com on your facebook page to spread the word! Thanks so much and have a great weekend!

Jared Bryan Smith

Natalie Cole’s Health Battle With Hepatitis C w/ Mary Hart on The Early Show… “That Interferon is really serious.”

Posted: October 21, 2011 in Uncategorized
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Great to see she is finally addressing her Hepatitis C. I wonder how many years total it lay dormant? What a hell of a disease. She walked around for 20 years just fine and then it hits her like a mack truck. Well I’m glad she’s speaking openly about it and doesn’t credit sloppy tattoo parlors like ole Gregg blames. Truth is one hell of a character trait these days, and Natalie seems to be facing things head on and without shame, and that is awesome. Also great news that she’s doing Interferon and not Ozone or Nitrus Oxide for Pete’s sake like Anthony Kiedis from Red Hot Chili Peppers, but actual Interferon like we all are told to do. I hope to hell she doesn’t suffer the post TX, or Post Interferon Syndrome so many of us are going through now. I blogged a bit about it on medhelp which is available via the link below, and basically as I state it seems to affect clear thinking, headaches, joint pain and the like. Nothing new, but still as far as I can tell being totally ignored by the medical community as a whole. And what’s good news for Interferon patients moving forward, is with Telapravir hopefully that number of people suffering from Post Interferon Syndrome will be even more dramatically reduced. It’s good news for people in general, but it doesn’t really help me or the others who are suffering extensively, from symptoms that are hard to prove, but exist in a multitude of us, as is reflected in this forum:

http://www.medhelp.org/posts/Hepatitis-C/Long-term-side-effects-of-interferon/show/866107

I just read someone state simply : “Had I known the fog Interferon would put me in, I would have made my peace with God and enjoyed what little time I had left.” Someone else stated, “Yes my husband beat HCV over 10 years ago but now lives in a constant state of depression.” Those are just in the last few handful of posts. I certainly don’t wish for Natalie Cole to experience any post TX symptoms as I have, but if she does, or if Steven Tyler or Gregg Allman did and spoke up about them, maybe somebody would listen.

On the forum it talks about the Mayo Clinic recognizing Post Interferon Syndrome as a real issue, but it was never documented, cited, ie proven. I would like to see real research done to see if it affects hormones, blood levels, immunity, etc. Everything seems to be out of whack for me and obviously we’re not imagining it if there are hundreds of people from all over the country explaining the same symptoms. I’m around 3.5 years out from Interferon and still wake up everyday with a massive headache, I mean, that is not normal. Perhaps Natalie Cole will experience some of those same issues and begin to be a voice for folks, for God knows nobody else has done it.

There is a Doctor who posted even in that Medhelp thread, but I reached out to her personally and she didn’t respond. Her explanation of side effects is stunning, it’s worth reading, but basically she talks about not being able to complete the multitasking she used to be so capable of and having to resign as a Doctor of Medicine. I mean, you would think she would have the leverage to get people to listen, but I guess you’re talking about a multi billion dollar pharma industry, and these guys have power. Pharma is the Crown Jewel of the American Industrial Empire, and I suppose they aren’t about to take down a multi billion dollar line of products, especially when no matter what our complaints, it’s better for public health to get rid of Hepatitis C, than it is to wait until the “cure” has less long term permanent side effects. For the greater good, better to cure it now, stop it’s spread, than worry about what that “cure” does to people’s brains, especially when on paper, and through standard blood work, it looks as though they are fine. Those permanent side effects are much more difficult to measure, in fact it would take comprehensive aptitude tests taken before and after, and that doesn’t really fall under the gastroenterology field, they would need to bring in Neurologists and maybe even Psychiatrists to really measure brain function before and after Interferon and again, it still wouldn’t be better for the public, greater good, than curing it, no matter what. Still, telling people, they will only suffer “flu like symptoms” for a 12 months, is a bald faced lie. If I’d known a fraction of what I know now, I’d have at least waited until it was a more pressing case of Hep C before starting Interferon. Now that we are here though, I just want to know if there is anything we can do to improve our state of mind moving forward. Hormones, steroids, vitamins, anything.

Sadly without a voice, I don’t believe a single study is being done to even qualify our issue as a valid one. It could all change in a New York Minute though, and I do read of lots of people who don’t suffer these symptoms. Maybe it was because I administered these shots myself for 48 weeks, maybe I overdosed a couple of times. Lord knows I’m an over achiever, and overdosed  a few times on the recreational stuff, though never significantly enough for death or a stomach pumping. Still perhaps my lack of health insurance and self-administering exacerbated the problem. I don’t know. Maybe it will clear after year 4 post Interferon. God I hope so, I really wish I didn’t get the headaches and brain fog. Maybe someone with credentials, or fame will give the syndrome a voice, and we will get studied and fixed. I don’t know, I’m gonna keep on keeping on, I didn’t get sober to bow out or give up, but this is certainly been challenging as hell, it’s persistence daunting.

And again, even with all that said, I am glad to be Hep C free. My liver enzymes were through the roof, and a friend of mine just had his come back after going through Interferon twice, once for a year, and once for a year and a half, and it’s come back. Now they think they’ll treat with Telaprevir. And he states he doesn’t get the brain fog, so it’s just weird. I’m glad it’s gone, and I’m glad he can treat now with Telaprevir with odds of 80% instead of 50%. God willing he’ll beat it, and God willing this fog and pain will fade away. I am grateful to be alive, I just wish more was being done to address the long term implications of Post Interferon Syndrome so many of us seem to be experiencing.

If you haven’t please check out my journey of sobriety, Hep C, and Interferon for free on http://www.books4free.com and of course on Amazon:

– Jared Bryan Smith