Posts Tagged ‘Hepatitis C Blog’

Wow, the print on demand arrangement still being pondered, as I wonder why they would claim on my splash page on Amazon that there are only 3 copies left, and to order soon, they throw fuel on the fire with yet another jaw dropper. The book is now for sale, not at the 24.95 I set the price at months ago, but for 17.96.

This is well below their wholesale cost on the entire book, and though I get it, would have been nice to have received an email from the publisher, Books4free.com, but I’m sure he’s too busy golfing, fishing or dating bipoloar women to keep me posted… He swears he received nothing, but who knows.

The point is that Amazon owns his ass and they can set the price wherever they like, whenever they like, and do not have any need to keep him or the author informed. Fortunately books4free.com assures us that it’s actually a good thing for our customers, that the price is down, and though it eats into Amazon costs, we will receive the same pay out per book even though its below cost.

That is where I call bullshit. What lightning source should tell have told us is that most likely Amazon has bought a bulk of the book, since it’s selling well, and hence, gotten that bulk for a cheaper cost, probably saving something like 7 or 8 bucks per book. Which basically means Lightning Source is overcharging books4free.com and myself, something in the neighborhood of 10 bucks a book as there has only been about 20 or so sold, and I bet that’s the cut off for Amazon to actually stock some books. I bet at 100 there is another bulk pricing break.

It would really be nice to be privy to all this information going in, but alas, we are not, and learning these ropes as we go along.

In the meantime, I guess we should just be grateful that the cost is done to 17.96 per book, 7 dollars cheaper than the list price we set, and go ahead and advertise on Facebook and wherever that it’s on sale! Better than a 7 dollar increase I suppose.

Now if said publisher would just stop dating crazy women, maybe he would have the time to get me on some radio and television shows like a proper publisher! Some habits die harder than others I suppose.

-Jared Bryan Smith

What the hell… I seriously thought this was Print on Demand. How strange. Also, how in the hell do you change a subtitle in Amazon to reflect that the book is about Hepatitis C. Grrr… When you search Hepatitis C books, mine is nowhere to be found, because I used an artsy title instead of a factual one…. so I tried to change the subtitle with more than a few keywords, and they freaking rejected it.

So, I, the author, don’t have authority to change my own subtitle. Maddening.

Not that I liked the title, the most unartistic, mangled drivel ever, written soley for the purposes of Amazon’s search engine… still I was proud of the amount of keywords I crammed into 200 characters…alas it was rejected:

“Current value: Hippopotamus Sea
Your suggestion: Hippopotamus Sea: My Viral Sobriety, or How I Beat Hepatitis C, Addiction, Alcoholism, & Interferon by Working the 12 Steps of AA, Alcoholics Anonymous, & Recovery Stories of Drinking, LSD, & Cocaine”

* Please do not add descriptions to the title. The title should be as it appears on the book.

Well ya know what Amazon, how about you stop trying to sell Hungry Hungry Hippo to my NOT INTERESTED IN HIPPOPOTAMUS customers, you over digitized, zealous, taking the art out of writing demons!!! But I digress… I shall return in a better mood later.

At least we’re back in top 100 recovery books again… introducing another problem, how do I get classified under Hepatitis C Books?

-Jared Bryan Smith

So the momentum is beginning to slow down as the facebook crowd who were awaiting books, are now reading rather than ordering I suppose. At the peak the book was in the Top 100 Alcohol and Recovery books, ranking at #67, but unfortunately I don’t know how many books that is in that given hour. On the overall ranking it’s maxed out at 32,000, which isn’t bad considering there are millions of books on Amazon, but now that it’s back in the 100-200k range, I’m scared to see where it will be in a week. Moving forward reviews, word of mouth, emails, and networking will be more influential than facebook. Guess I need to start sending to reviewers.

The book chronicles being born into alcoholic family, rebelling, dosing LSD/Acid very young, and raising hell through his teenage years, stealing, running away, wrecking cars you name it, until he finally settles down however briefly to have a son, and play family for a few years, however poorly the execution. After divorce at 22 he picks up where he left off, raising cane again, and really doesn’t even begin to slow down as his mom lies dying of cancer. After she’s gone his drinking takes on new sincerity and the challenge I really took on is towards the end of the book where I do my best to explain madness and insanity, delusions, and paranoid schizophrenia to the normal, “earth” person as we recovered alcoholics refer to the unafflicted. It’s hard to explain the color red though to a blind man, and I wonder if anyone will understand the enormity of my massive, intricate, detailed derangement. All I could do was try and explain how lost I’d gotten, how lost I stayed for so long, and how far I’d come back. It’s not a short journey, but given the number of people, just in our class of 1996, that are now dead to alcoholism, addiction  or something related, it’s a story worth reading, and worth understanding, as the solution, the 12 Steps of AA, can work on really any spiritual malady, but most especially addiction.

If the AA 12 Steps could work on me, who went to the edge of the abyss, looked in and had the abyss stare back in, invade and pay rent for years, it can seriously work on anyone. I really wrote the book I wish I’d read when I went to pick up a Million Little Pieces by James Frey. I wanted some hope, I wanted a story as dark as mine, detailed and honest, and messy with guts and humiliation, and something bigger than myself. When I lived that firsthand, I felt it was worth writing, and though a little long, as I’m beginning to hear back, it’s worth the read. If you think it’s long reading, thank God you didn’t live it!

-Jared Bryan Smith


Well here it is September 27th 2010, well past the two weeks I thought it would take for me to finish the book, and I’ve finally come to terms with the final pdf… books4free has uploaded to Lightning Source, where we’ll be selling the hard copy prints, and since we’ll be marketing from the books4free.com website, to amazon, smashwords, and the like, I suppose we’ll just distribute all digital copies for free, and hope that it sells more hard copy books… We’ll see I suppose…

It’s been a long road, and now I’m just exhausted and hope the book isn’t terrible.

JB Smith

So we have republished on smashwords, and for now have the price set at 9.95, as we’re not trying to push the digital copy just yet, but am just holding steady as we await the publication for hard copy, via Lightning Source. My web designer, slash graphics designer, has the final manuscript, and has to touch every single individual page in order to make the font right for Lightning Source. A  bit of a pain in the ass and another expense I didn’t see coming, in this learning curve I could have never anticipated. I wonder how much I would have saved using an independent publisher, rather than trying to do everything all myself.

Oh well, such is life, and now we wait. Still I love the cover, the final edited book, and hopefully, I’ll sell a few copies, and recoup at least some of the expenses, energy and effort, as we get closer to a launch.

There are much better memoirs, and MUCH MUCH better thorough detailed 12 step based books, but I look at this as an idiots or dummy guide to the 12 steps, if someone as lazy, slow and burnt out as me can do them, defeat alcoholism, drug addiction, Hep C, Interferon, and family crises, than truly anyone can do it.

I also one day hope to change the names to the originals, but would have to go back and get individual signatures for all the as of now anonymous characters. One day, when there is more time, I plan on doing that. Until then, it’s still a good book, chronicling a true story, just with different alias’s. Hope you enjoy.

Jared Bryan Smith

Just put down the Fortune magazine in which I saw that Blurb.com is doing 45 million in revenues already. Good for them, that definitely shows this small publishing market continues to grow and thrive. God willing Books4free.com will enjoy just a bit of that success, as it launches with my first title, Hippopotamus Sea.

The cover is done, the editing is done, and the publisher I understand now awaits the Proof book from LightningSource.com to prove that they are actually capable of printing and shipping an actual hard copy book.

After much research, the decision to use smashwords to distribute all the digital formatting of the book seems to be the wisest. They take the book, and after formatting for Mark Coker’s meatgrinder software, which I had to send off the word document to rid it of all spaces, tabs, and page numbers, we will upload to smashwords, which will then, theoritiacally make it available on ipad, epub, nook, kindle, and the like, which is a good deal for me the writer, the publisher, and hopefully the consumer…

I saw on the smashwords website the ability to give away the book 4 free to soldiers in Afghanistan and Iraq, so in the spirit of books4free.com, we will definitely be participating in that venture.

The journey feels like it’s getting closer to completion, but of course, the marketing and selling of the book will just be the next step. The writing, editing and bringing to market though, is hopefully almost done. Once books4free.com is complete and their is a book for sale, for read for free, and digitally, I’ll be excited… right now I’m just feeling a little overwhlemed by it all.

-JB Smith

 

My mom died of Cancer in 2004, and 6 years later, I have 3.5 years sober, and owed her an amends. Not the kind one can make in person though, but a living amends. As I was advised, a letter.

For several reasons I document in the book it took me no less than 5 tries to get to her headstone and be able to sit and write for a couple of hours. Having finished the amends, it felt anti-climatic, if not a touch depressed.

Though I cleared the Hep C virus in 2008, and went 6 months without treatment, was then tested, found negative and thus declared Hep C negative, I went and got another test on Friday, just to be sure as I go to publish with the book, in the next few weeks, and it would be nice to say it’s been 2.5 years without the virus, instead of just that six month test. I guess what I’m saying is that I’m nervous about that test, regardless of being pronounced cured 2 years ago, and that visiting my moms grave, after 6 years of absence was more than a little emoti0nally taxing.

Visiting my Dad’s grave, who shot himself with a .357 when I was 11 years old, was usually filled with more anger, and self righteousness, than visiting my moms, which brought up guilt and depression. Oh well. I’m sure I’ll get good news next week from the gastroenterologist, finish typing up the amends, and thus the end of the book, get the cover back from the graphics designer, and launch the site books4free.com finally as I’ve been patiently awaiting the finalized book to launch, and I’ll have accomplished a goal I set in motion over 10 years ago, I never knew would have taken me down this road, facing Hepatitis C, alcoholism, addiction, Alcoholics Anonymous, and living life on life’s terms, but here we are.

Life is an adventure I suppose. The living amends to my mom is good, I believe it ties the book up nicely. I’m glad I did it, but it was damn emotionally taxing, like most of the book. Reminds me of a quote I read about writing years ago.

“Writing is easy; I just open a vein and bleed.”
— Red Smith

Funny I could have sworn that quote included a typewriter. Damn google, it’s probably a misquote, feel free to respond with the original origin, but you get the gist.

– JB Smith

I did it. After almost two years of writing my book about Hep C, and hell, 3.5 years of thinking about the story, I decided to google the competition out there and see who else had written stories involving Hep C, and of course, as the challenges are so parallel, sobriety. I don’t know why I was so reluctant to see what was out there, other than, I just didn’t want to be discouraged by seeing like Hemingway’s surprise Hep C autobiography I’d never known about or something, and I just wanted to knock it out before I looked. Anyway, I found some stuff out there, but nothing that blew  my socks off.

First and foremost, you have Anthony Kiedis’ Scar Tissue, a great book I’ve heard, as he’s the front man for the Red Hot Chili Peppers, and God knows we’ve all heard, Under the Bridge Downtown, and can hear the description of his pain as he shoots heroin for the first time. Surely we can expect him to have had his own Hep C struggles, and of course the sobriety struggles that go along with it. I love one of his quotes I just found because it is exactly what happened to me regarding drugs and alcohol:

“You know I love pot, and I love beer, but I am totally sober, just because it completely stopped working for me.
Anthony Kiedis”

Man, I remember hearing that in an AA meeting before it happened, and thinking, What Bullshit. But whoa, what fear descends upon the madman when it occurs. Of an addict for 15+ years, when that day comes that the drugs and alcohol quit working, you will feel fear, and loneliness that few others ever experience. Your best friend of years disappears instantly, and you can’t imagine life with or without drugs and alcohol. I say this is my book, but it remains one of my favorite quotes: “Most of God’s miracles, first felt like a punch in the gut.” Eventually I would be grateful for that day, but I digress. So Anthony Kiedis had Hep C, wrote an autobiography, and says some pretty good shit about sobriety and Hep C. However, a lot of it was rock star, elite, Pie in the Sky treatment that Joe America simply doesn’t have access too. He says he beat it with a controversial treatment called Ozone gas, which is presumably, painless, miracolous, and just as effective as 48 weeks of hellish painful Interferon Treatment. My only objection here, is that if you ask your Dr., any major Gastroentologist in the United States about Ozone, they will laugh it off, or claim the expense is too high, that it isn’t FDA Approved, or just say that the only thing that is medically recognized to cure Hep C is Interferon…which is by the way, expensive, painful, depressing, and maddening. It’s like saying well, the common man has to take Chemotherapy for Cancer, but I, being a pompous rock star, was able to take nitrus oxide, and laugh away my disease.

“And finally yes, it’s true that Anthony Kiedis has hepatitis C. He contracted it somewhere along in his escapades and it is believed that it was caused by the drugs.  He is combating the infection with ozone administered by flea’s and his personal nurse Sat Hari. Ozone is a “wonderful-smelling” gas that has been used legally in Europe to treat everything from strokes to cancer. Most of this information can be found in his biography “Scar Tissue”.”

A wonderfully smelling gas. Interesting. I wonder how true any of this is? It’s all legal in Europe huh? If this is the case, why does the US not use it. Maybe I don’t know shit, and it’s a huge conspiracy against Americans, but as an American I was given one option, by my medical Dr., to defeat Hepatitis C, and that was Interferon, and though it was painful and hellish it did seem to work. After 6 months the disease was clear from my system, and after 2 years, I’m going in today to get it checked again, and hopefully will receive the same result. Hep C free and clear. I’ll ask my Dr. about Ozone today.

The other book I was able to find out there was written by “Johnny Delirious, Hepatitis C, Cured, who claims, from what I could tell briefly that he beat the disease, which he was diagnosed with in the late stages and given 8 months to live, with only homeopathic means. Ie… vitamins and sunshine, and positive thinking. Quite honestly his site links to so many sites charging for Homeopathic cures, you can’t help but think that this guy is just marketing to a demographic already susceptible to delusions and pie in the sky instant gratification solutions. I wonder how much money he’s made selling this book, and/or linking back to all the homeopathic solutions, that have absolutely no medical validity, and my MD claims are bullshit. Milk thistle? Gimme a break. This Virus will attack and kill your liver, and some dipshit is out there selling books about refusing a liver transplant and beating the disease on his good karma and GNC pills. Gimme a break. No I haven’t read the book, and no I don’t plan on it. I don’t know about Ozone treatments or homeopathic cures to Hep C, just as much as I don’t know how to moderate drinking or drugs. I got into this mess, taking short cuts, shooting for the angles, instant gratifications, and feel better cures, and the only way out of the hole I dug for myself, was the long ardous road of Interferon that an actual MD, speciliazing in the liver, suggested I take and whom laughed off, Ozone, and or Milk Thistle, and the other bullshit he offers on his website…

Also, never take medical advice from a guy whose last name is Delirious. Just saying. Maybe it worked for him, I haven’t , and won’t read the book, but for the average, Hep C infected addict, alcoholic, your options really don’t include Ozone, and or Vitamins and Milk Thistle. Follow your Gastroentologist’s advice and take Interferon. It’s tough, but it works, and these other cure alls are just that in my opinion.

On the other hand if Ozone does actually work, and the medical community has kept it out of the states, for profitability reasons or something that sinister, then Shame on them. Interferon changes you for life. If there were medical data, and access to Ozone, like rock stars apparently have, I would recommend it be the new treatment, but I have to assume, the United States, with the best, most educated Dr’s in the world, have a better reason than profits, to keep Ozone out of the US, and Interferon as the major treatment for this debilitating disease. I don’t know, but it just seems really strange, the only two other books out there, offer these fairy tale, delusional options, that weren’t available to me, or any of the other Hep C patients I’ve met here in the States. I guess, that makes my book original then. Unless of course, you are a rock star, then call Anthony Kiedis, he seems to have access to magical gas that smells great.

Please take a moment to read about my  journey through insanity, addiction, Hep C, Interferon, and AA on http://www.books4free.com and check out the strong reviews on amazon at:

-JB Smith