Posts Tagged ‘Hep C Blog’

Man oh man… me and my roommate stuck in an apartment at each others throats for 4 days in this Snowpocalypse finally took its toll yesterday when we ended up just straight screaming at each other at the top of our lungs.

So I started the day having to look for a new apartment. Last Saturday it was the woman I told off, now the room mate. I’m doing a fine job of letting my ego paint me into a corner lately. Can’t deal with her on her terms, so I say fuck everything and run (fear) can’t deal with my room mate on his terms, so I do the exact same thing. Fuck Everything and Run. Fucking FEAR.

The day actually started off pretty damn good and I closed a deal. My 5th for the month, I’m selling a text marketing solution to fast casual dining places, and there are residual incomes, so each little deal makes a difference. My goal is to sell 10 a month, and even with the ice storm, I’ve hit my quota for the half month, which aint bad considering the snowpocalypse, breaking it off with her, and now of course the room mate. So at least there is some light in the storm I guess…

But things went downhill from there. I go to the post office to put the check in the mail, because the client didn’t bring his credit card to the closing. Sooo, the post office tells me nothing is moving, no trucks have been there all week, and they have no idea when the trucks will begin rolling again. Before I went into the post office, I brought my leatherbound folder into the Jersey Mikes to try and sell to them but the owner was gone. After leaving the post office, I go out to my car, and I go to open the driver door, and I guess I pulled so hard I ripped my feet out from under me, sliding , really busting my ass, as my leather bound folder flies up into the air, scattering flyers with my biz cards everywhere, all over the parking lot, like a birds feathers in a cartoon after being nailed by a baseball. I cussed up a storm too, “Mutherfucker!!!!” as I’m getting up I see a mom pushing her stroller, all sympathy gone, disgusted at my vile mouth. I humbly walked around the parking lot picking up my flyers, which took a few minutes.

Driving out of the post office, flustered, bleeding, I blow past grandmas and soccer moms driving five miles an hour to haul ass over to Fed Ex so I can get the check to the CEO of my company. I pull in there, drive up to the parking spot, which is closed off on one side by a brick wall and when i go to hit the brakes, they just act like they don’t exist and i fucking nail the brick wall going 10 miles an hour. “FUCK”! I get out and an old lady is staring at me like I’m a moron…either from the cussing or the hitting the wall. I don’t know and I don’t care at this point.

Fed Ex tells me it’s 30 bucks and they can’t guruantee overnight… great, I fill out the form and send it off, bleeding all over the packing slip. I go apartment hunting… they suck, they are ghetto fabulous, and they require good credit and a deposit otherwise. Fuck… I go to pay my ex child support. I go inside to sit down for lunch while I wait for her, and the waiter, who I used to know, over 5 years ago when i drank in the joint at Chaplains, asks me what I want, I say a water, and go to pee. When I return there is a cold frosty beer on my table, a shot of jaigermeister, and the waiter, smiling like the devil. “Man that looks good buddy, but I haven’t had a drink in 4 years, and I asked for a water.” My bad he says. The reuben I ordered wouldn’t have passed quality control at my sons middle school cafeteria… I ate it anyway, and of course it gave me a stomach ache.

I drove down to Little Five to look at apartments where you don’t need credit, away from her, away from my meetings, away from my life, but fuck it, what choices do I have. 75/85 is bumper to bumper traffic. I circumvent it by going all back roads through Atlanta, past peidmont, monroe, blvd, to Freedom, I know my way around. The apartment, where I used to be a dope feign in little five, is still of course, the dump I remembered. Cool location, unique building, but an OCD nightmare, beyond description, lots of paint covering up problems, uneven floors, a kitchen to inspire fasting, I mean it’s not ideal. So I left bummed.

Went to see my client in Atlantic Station whom bought my first order last week, and guess what? She wasn’t there. Bought a coffee drink, but surprise, my check card was declined. Try this one. Also declined. Had to go out to car, did I mention this was my first client, oh yeah, I’m stylin, pray I have enough change scrounged up, which thankfully I did, and finally leave, embaressed and humbled. Get on 400 northbound and there is a wreck. 1 hour later, I make it home.

Man, that’s a shit day, hell I’m afraid to leave the house now. I did close the deal though, and once again, I wasn’t even tempted to drink when it was put right in front of me. That’s God, not me. Still, though I walked through the day successfully, it was stressful the entire way through. And I miss her terribly, but I guess I did that to myself.

Seriously, there just aint no sunshine when she’s gone.

-JB Smith

Researching the three I know of, Steven Tyler, Anthony Kiedis, and Pam Anderson, I was glad to find at least Steven wasn’t babbling about some pie in the sky treatment like Ozone, but had in fact gone through 11 months of Interferon treatment and was actually free of the virus in his bloodstream, or otherwise cured. It was in this article from September 2006 in people magazine.

Steven Tyler Reveals Hepatitis C Battle

Steven Tyler Reveals Hepatitis C Battle | Steven Tyler

Steven Tyler

David “Bagel” Ungar/FilmMagic

Aerosmith frontman Steven Tyler has revealed that he was diagnosed with hepatitis C three years ago, and recently went through 11 months of treatment.

“I’ve had hepatitis C for a long time, asymptomatic,” Tyler tells Access Hollywood in a new interview set to air Tuesday. “And I talked to my doctor … and he said now is the time and it’s 11 months of chemotherapy. So I went on that and it about killed me.”

Tyler, 58, says he’s much better after undergoing the treatment. “It is nonexistent in my bloodstream as we speak, so it’s one of those few miracles in doctoring where it’s like a complete cure,” says Tyler.

Hepatitis C is a liver disease spread by contact with the blood of an infected person, according to the Web site for the Centers for Disease Control. Many people who have hepatitis C show no symptoms of the disease.

Tyler also says the treatments, which included taking the drug interferon, were hard in his marriage to his wife of 17 years, Teresa, whom he split from earlier this year.

“I had a little problem at home, to say the least,” he says. “I would run upstairs at night, you know, to put the kids asleep and wake up at 3 in the morning with a nosebleed you know, just passed out from the interferon, the treatment.”

After keeping quiet about the disease for so long, Tyler says he’d like to share his knowledge about it with others.

“I may go on Oprah and talk about this,” he says. “I mean you know it’s just one of those things… it’s one of those things people don’t speak about it, but it is treatable.”

In March Tyler announced he planned to undergo surgery for an undisclosed medical condition, which forced Aerosmith to cancel its remaining tour dates. At the time, his rep said that doctors had advised the singer “not to continue performing to give his voice time to recover.”

So that was cool to find out. It made me want to find more about Anthony Kiedis and Pam Anderson. I found an excerpt from Anthony Kiedis’s book Scar Tissue, but man if I just don’t believe a word of it:

But the doorbell interrupts my reverie. A few minutes later, a beautiful young woman enters the living room carrying an exquisite leather case. She opens it and begins to set up her equipment. Her preparations complete, she dons sterile rubber gloved and then sits next to me on the coach.

Her elegant large glass syringe is handcrafted in Italy. It’s attached to a spaghetti — shaped piece of plastic that contains a small micro – filter so no impurities will pass into my blood stream. The needle is a brand new, completely sterilized microfine butterfly variant.

Today my friend has misplaced her normal medical tourniquet, so she pulls off her pink fishnet stocking and uses it to tie off my right arm. She dabs at my exposed vein with an alcohol swab, and then hits the vein with the needle. My blood come oozing up into the spaghetti – shaped tube, and then she slowly pushes the contents of the syringe into my bloodstream.

I immediately feel the familiar weight in the center of my chest, so I just lie back and relax. I used to let her inject me four times in one sitting, but now I’m down to two syringes full. After she’s refilled the syringe and given me my second shot, she withdraws the needle, opens a sterile cotton swab, and applies pressure to my puncture wound to for at least a minute to avoid bruising or marking on my arms. I’ve never had any tracks from her ministrations. Finally, she takes a little piece of medical tape and attaches the cotton to my arm.

Then we sit and talk about sobriety.

Three years ago, the might have been China white heroin in that syringe. For year and years, I filled syringes and injected myself with cocaine, speed, Black Tar heroin, Persian heroin, and once even LSD. But today I get my injections from my beautiful nurse, whose name it Sat Hari. And the substance that she injects into my bloodstream is ozone , a wonderful – smelling gas that has been legally used in Europe to treat everything from strokes to cancer.
I’m taking ozone intravenously because somewhere along the line, I contracted hepatitis C from my drug experimentation. When I found out that I had it, sometime in the early ‘90s, I immediately researched the topic and found a herbal regimen that would cleanse my liver and eradicate the hepatitis. And it worked. My doctor was shocked when my second blood test came up negative. So the ozone is a preventative step to make sure that pesky hep C virus stays away.

I took years and years of experience and introspection and insight to get to the point where I could stick a needle into my arm to remove toxins from my system as opposed to introducing them. But I don’t regret any of my youthful indiscretions. I spend most of my life looking for the quick fix and the deep kick. I shot drugs under freeway off- ramps with Mexican gangbangers and in thousand – dollar – a – day hotel suites. Now I sip vitamin – infused – water and seek out wild, as opposed to farm raised, salmon.

For twenty years now, I’ve been able to channel my love for music and writing, and tab into the universal slipstream of creativity and spirituality, while writing and performing our own unique sonic stew with my brothers, both present and departed, in the Red Hot Chili Peppers. This is my account of those times, as well as the story of how a kid was born in Grand Rapids, Michigan, migrated to Hollywood and found more than he could handle at the end of the rainbow. This is my story, scar tissue and all.”

“Scar Tissue” is an heartrending story of the life of Anthony Kiedis and the Red Hot Chili Peppers and is an inspiring movement for the spiritual creating of making music and finding the ride tunes and the struggles of a rock band in the music industry.
So yeah, I just have a hard time accepting that Anthony Kiedis has this European cure all, but Steven Tyler had to do a tough as nails 11 month long Interferon regimen that took it’s toll on his marriage, and not to mention the hellish side effects of headaches, exhaustion, and feeling about 50 IQ points lower than where we started. I mean couldn’t Steven Tyler have afforded the same treatment? Yes, of course he could, and he must have researched it, and probably even talked to Anthony about it, only he didn’t go down that road….probably because Anthony read him a horoscope or something fruity and Steven decided to go with something more clinical proven…lets see what I can find a bout Pamela Anderson and her Hep C battle.

“Playboy girl Pamela Anderson has taken up the cause to promote awareness about Hepatitis.

The former ‘Baywatch’ star was diagnosed with liver disorder way back in 2001 after she contracted it through a shared tattoo needle but feels there is nothing to feel ‘embarrassed’ about the condition, The People reported.

The 43-year-old star controls the infection with medical help but personally wants to raise awareness so that other Hepatitis victims do not endure it.

“I’ve had liver biopsies. I get checked every single year, my doctor told me just keep doing what you are doing. I also have the kind that’s easiest to control. There is no cure for it, so the important thing is to encourage people to get tested and not be ashamed. People get embarrassed as you get it from blood-to-blood contact, but it is not just junkies who have it,” said Pamela Anderson.”

Well, I don’t know what I expected. Poor Pam, she is just a blonde bimbo out of Hollywood with her best years behind her. Lol, she’s dead wrong though, it is curable, and her Gastreoentologist has outdated information. Of these three Steven Tyler seemed to have his eye on the ball the most. You know what is intriguing though, is the fact that 3 heavy weight celebrities all received different medical advice. I mean you would think, paying top dollar out west in LA, these three would receive the same fucking consensus but no, all three get different advice, and then of course Anthony called the psychic hotline for a consultation, but still. Nobody laid it out for them in no uncertain terms, what is they have, what they are dealing with, and what is the best way to cure it and/or treat it. Goes to show you that you have to do your own research and take everything with a grain of salt. I’m glad my Doc here in Atlanta, Dr. Hersch, told me it was curable, through Interferon, and that the young do better than the old. I mean, poor Pam sounds like she’s being told to wait to treat it until it’s a problem, but my understanding from Dr. Hutchinson out of Duke, was that the young seem to be on the better side of the 50/50 early responders side, so then, that advice for Pam would be terrible. Sure, maybe they come up with something more effective and less harmful long term than Interferon, but hell, maybe they don’t, and she begins treatment after cirrhosis has set in, and then bam, bad luck Pam, you’re on the wrong side of the 50/50, you don’t respond to treatment, you have a year to live. Wow, that would really suck, and it would all be due to the different kinds of medical advice being offered to these three medically insured celebrities. Jesus, I mean, if these A listers (maybe B) all get different varying medical advice, what a fucking miracle I got good advice, without health insurance as a no name kid out of Atlanta. I must remember to count my many blessings… and pray that Anthony and Pam don’t realize they were wrong way to late.

Please take a moment to read about my average man’s journey through insanity, addiction, Hep C, Interferon, and AA on http://www.books4free.com and check out the strong reviews on amazon at:

-Jared Bryan Smith

Seriously, if there was any room in that coffin I’m sure she’d be turning in it. We were very much strategically brought up in the southern manor of giving off the appearance of normalcy, even if child abuse, domestic violence, and alcoholism was the prevailing wind inside the house, you’d better had a good cover story when you left the home front. Today, I am an open book, and proud of it. But boy would mama be upset that I’d made it to the top of the list of all Hep C book listed on Amazon. What a dreadful shame. I can literally hear her southern drawl “But JB why would you want people to know that about you.” Haha, because mom, I’m cured of it, and hopefully somebody somewhere will find solace and comfort in that fact. She would have had a hard time arguing that, as she was a good and decent christian woman, just a little preoccupied with social status and the appearance of the status quo. Ultimately the conversation would have ended with “Well, at least you had the good sense to use a pen name.”  haha….

That wasn’t my good sense, I would have much rather written it under my actual name, but through years of trial and error in following my own counsel I decided to allow my sponsor and attorney have their way with that one. The 11th tradition states of course that we must be anonymous in press, radio and films, and therefore I am, regardless of how many Glenn Blecks and the like out there aren’t. It’s difficult though, promoting a book under a pen name.

That being said, we are still well under the 100 books sold goal. Hovering around 50. I had hoped the funny ass cartoons about AA relationships would make people curious about the book but that too hasn’t generated too many book sales. Oh well, I am pretty happy with the new ranking under Hepatitis.

Thanks again for all the grassroots support people, making the number one slot on the Hepatitis C list on Amazon is a big deal even if it’s only taken 50 books to get there! Hope we stay at the top of the list for a while!

Thanks again and I hope everyone enjoys their Christmas!

-Jared Bryan Smith

Although I keep having to explain to people to press the downloads button to get the kindle version on http://www.smashwords.com instead of on amazon.com, Mark Coker’s smashwords format is a MUCH better alternative than the kindle monopoly at Amazon, period the end, so even if I lose a few ebook sales from people who can’t find the downloads button on books4free.com or who keep going directly to the Amazon page, I believe long term smashwords will be the recognized distributor of most ebooks, so I’m sticking with Mark Coker.

Here is his latest blog, about ebook publishing, definitely worth the read.

http://www.huffingtonpost.com/mark-coker/the-seven-secrets-to-eboo_b_751743.html

-Jared Bryan Smith

So the initial book launch has begun to fade, and with much stress I’ve watched the title go from top 50k, to under 100k, to 200k, and now is floating somewhere around 400k top books. Which is really still sad if you think of about it considering I’ve sold only around 30 copies or so. So now the real work begins it seems.

Getting the book to reviewers, getting those 30 readers to leave Amazon reviews, making sure Amazon lists it in proper medical categories, under Hepatitis C, Addiction, alcoholism etc, all very important. And then of course writing a decent press release, getting that press release and then hopefully a Press Kit into the hands of editors, producers, etc….  All it will take is one good hit, but it may be hard to do without the aforementioned reviews, and so , again getting the book to recognized reviewers will be crucial.

There are services that will do that for you, ranging from $250 bucks to 1500, but being unemployed, having spent every dime on the http://www.books4free.com launch and not being well funded, books4free is going to need to really begin rolling up their sleeves and getting it out there.

Fortunately his pain, followed by a solemn oath to avoid love again indefinitely, should definitely free up his calender…

-Jared Bryan Smith

What the hell… I seriously thought this was Print on Demand. How strange. Also, how in the hell do you change a subtitle in Amazon to reflect that the book is about Hepatitis C. Grrr… When you search Hepatitis C books, mine is nowhere to be found, because I used an artsy title instead of a factual one…. so I tried to change the subtitle with more than a few keywords, and they freaking rejected it.

So, I, the author, don’t have authority to change my own subtitle. Maddening.

Not that I liked the title, the most unartistic, mangled drivel ever, written soley for the purposes of Amazon’s search engine… still I was proud of the amount of keywords I crammed into 200 characters…alas it was rejected:

“Current value: Hippopotamus Sea
Your suggestion: Hippopotamus Sea: My Viral Sobriety, or How I Beat Hepatitis C, Addiction, Alcoholism, & Interferon by Working the 12 Steps of AA, Alcoholics Anonymous, & Recovery Stories of Drinking, LSD, & Cocaine”

* Please do not add descriptions to the title. The title should be as it appears on the book.

Well ya know what Amazon, how about you stop trying to sell Hungry Hungry Hippo to my NOT INTERESTED IN HIPPOPOTAMUS customers, you over digitized, zealous, taking the art out of writing demons!!! But I digress… I shall return in a better mood later.

At least we’re back in top 100 recovery books again… introducing another problem, how do I get classified under Hepatitis C Books?

-Jared Bryan Smith

So the momentum is beginning to slow down as the facebook crowd who were awaiting books, are now reading rather than ordering I suppose. At the peak the book was in the Top 100 Alcohol and Recovery books, ranking at #67, but unfortunately I don’t know how many books that is in that given hour. On the overall ranking it’s maxed out at 32,000, which isn’t bad considering there are millions of books on Amazon, but now that it’s back in the 100-200k range, I’m scared to see where it will be in a week. Moving forward reviews, word of mouth, emails, and networking will be more influential than facebook. Guess I need to start sending to reviewers.

The book chronicles being born into alcoholic family, rebelling, dosing LSD/Acid very young, and raising hell through his teenage years, stealing, running away, wrecking cars you name it, until he finally settles down however briefly to have a son, and play family for a few years, however poorly the execution. After divorce at 22 he picks up where he left off, raising cane again, and really doesn’t even begin to slow down as his mom lies dying of cancer. After she’s gone his drinking takes on new sincerity and the challenge I really took on is towards the end of the book where I do my best to explain madness and insanity, delusions, and paranoid schizophrenia to the normal, “earth” person as we recovered alcoholics refer to the unafflicted. It’s hard to explain the color red though to a blind man, and I wonder if anyone will understand the enormity of my massive, intricate, detailed derangement. All I could do was try and explain how lost I’d gotten, how lost I stayed for so long, and how far I’d come back. It’s not a short journey, but given the number of people, just in our class of 1996, that are now dead to alcoholism, addiction  or something related, it’s a story worth reading, and worth understanding, as the solution, the 12 Steps of AA, can work on really any spiritual malady, but most especially addiction.

If the AA 12 Steps could work on me, who went to the edge of the abyss, looked in and had the abyss stare back in, invade and pay rent for years, it can seriously work on anyone. I really wrote the book I wish I’d read when I went to pick up a Million Little Pieces by James Frey. I wanted some hope, I wanted a story as dark as mine, detailed and honest, and messy with guts and humiliation, and something bigger than myself. When I lived that firsthand, I felt it was worth writing, and though a little long, as I’m beginning to hear back, it’s worth the read. If you think it’s long reading, thank God you didn’t live it!

-Jared Bryan Smith


Well the book launched yesterday! I was very excited as I didn’t realize it was basically automatic from the acceptance of the proof with Lightning Source. I was putting pressure on my graphics designer/web designer who was basically stalling and putting it right back on me, which drove me a little batty. So I was thinking books4free was going to have to call LSI, which is always a pain in the ass, and find out how to connect LSI and Amazon together. Thankfully it was all done automatically.

Hippopotamus Sea; My Viral Sobriety, written by me, Jared Bryan Smith, 2.5 years in the making, and it finally launches on 10-10-10, a sheer coincidence. Chronicling a 17 year drug and drinking binge, sobriety,  the 12 Steps of AA in their modern workings, haha, as well as, of course, the contraction of Hepatitis C, the insane costs of the treatment without insurance, the charity given by Roche, and the grueling Interferon treatment itself, it’s certainly a book anyone in recovery would appreciate.

It doesn’t sugar coat much, and cuss words are modern, and used liberally. Anyone who has Hep C, isn’t going to be offended I suspect, but it may not penetrate the staunch religious aspects of AA as some are very averse to cursing. My God doesn’t speak English exclusively so he could care less how many times I drop the F bomb. I didn’t cross the GD line though, haha. It’s a good book, regardless of anyone’s delicate sensitivities. I couldn’t write honestly and not cuss a little.

So as of yesterday my best ranking was in the top 32000 on Amazon, but today, Monday, we’ve drifted back to about 75k, so my brother just bought 3 copies to test this theory, see what happens. Very strange as a publisher books4free can’t just go and look up exactly how many copies they’ve sold, but I guess they probably just haven’t figured that out yet. I suppose books4free should call LSI regardless just to see how to do that.

I’m glad the book is up though. I used a technical editor, and in all honesty it wouldn’t shock me if later on down the road I ended up getting an editor specifically attuned to working on autobiographies, to get rid of some of the name dropping, probably crop some pages, but at this stage, it’s the very best I could do with the tools, resources, and time I had at hand. Especially the money. I would have saved thousands going through Lulu.com or any Vanity Publishing Press out there, but we wanted to use my book to launch books4free.com. We’ll see how that all plays out moving forward  I suppose.

So go take a look please, if you haven’t already!

http://www.books4free.com

-Jared Bryan Smith

So we have republished on smashwords, and for now have the price set at 9.95, as we’re not trying to push the digital copy just yet, but am just holding steady as we await the publication for hard copy, via Lightning Source. My web designer, slash graphics designer, has the final manuscript, and has to touch every single individual page in order to make the font right for Lightning Source. A  bit of a pain in the ass and another expense I didn’t see coming, in this learning curve I could have never anticipated. I wonder how much I would have saved using an independent publisher, rather than trying to do everything all myself.

Oh well, such is life, and now we wait. Still I love the cover, the final edited book, and hopefully, I’ll sell a few copies, and recoup at least some of the expenses, energy and effort, as we get closer to a launch.

There are much better memoirs, and MUCH MUCH better thorough detailed 12 step based books, but I look at this as an idiots or dummy guide to the 12 steps, if someone as lazy, slow and burnt out as me can do them, defeat alcoholism, drug addiction, Hep C, Interferon, and family crises, than truly anyone can do it.

I also one day hope to change the names to the originals, but would have to go back and get individual signatures for all the as of now anonymous characters. One day, when there is more time, I plan on doing that. Until then, it’s still a good book, chronicling a true story, just with different alias’s. Hope you enjoy.

Jared Bryan Smith

Just put down the Fortune magazine in which I saw that Blurb.com is doing 45 million in revenues already. Good for them, that definitely shows this small publishing market continues to grow and thrive. God willing Books4free.com will enjoy just a bit of that success, as it launches with my first title, Hippopotamus Sea.

The cover is done, the editing is done, and the publisher I understand now awaits the Proof book from LightningSource.com to prove that they are actually capable of printing and shipping an actual hard copy book.

After much research, the decision to use smashwords to distribute all the digital formatting of the book seems to be the wisest. They take the book, and after formatting for Mark Coker’s meatgrinder software, which I had to send off the word document to rid it of all spaces, tabs, and page numbers, we will upload to smashwords, which will then, theoritiacally make it available on ipad, epub, nook, kindle, and the like, which is a good deal for me the writer, the publisher, and hopefully the consumer…

I saw on the smashwords website the ability to give away the book 4 free to soldiers in Afghanistan and Iraq, so in the spirit of books4free.com, we will definitely be participating in that venture.

The journey feels like it’s getting closer to completion, but of course, the marketing and selling of the book will just be the next step. The writing, editing and bringing to market though, is hopefully almost done. Once books4free.com is complete and their is a book for sale, for read for free, and digitally, I’ll be excited… right now I’m just feeling a little overwhlemed by it all.

-JB Smith