So in the interest of conspiracies and full disclosure, I did just formally complain to Roche Diagnostics, or a division of Roche called Genentech via an 1-800 number and case number *ahem 1462, because I was led to do this by an underground advocate of Hep C and Interferon treatments who are still suffering serious side effects from his Hep C treatment, Interferon and Pegasys, just as I am. So if I disappear mysteriously, let the bread crumbs start here! haha… He also forwarded me the side effects document that I posted on the left side of my blog here under Hep C Side Effects, and I’m grateful this guy is doing something, because 3 years out I am still suffering major headaches, daily and wake up every morning with a crushing pain in my skull, and I have to take 4 advil every single morning. At three years out I’m concerned that this is never going to go away, and in fact has been getting worse as of late.
The more concerning factor is that I’m now not alone, but have been hooked up with a group of at least 20 or so who are all experiencing these major side effects from Interferon treatment. It sucks, and mine, headaches, seem to be on the light side of the symptoms. There are people on this underground list with MS, fibromylgia, chronic joint and skin problems, and more. We’ve read doctors quotes talking about how it seems like anyone who uses Interferon is worse off than when they started. And yet I personally am obviously torn as to how to protest or be letigious, simply because I am cured of the disease of Hepatitis C, which now kills more people than HIV in the United States. So, I’m cured, but I suffer chronic pain. I wasn’t in dire need of Interferon treatment, I could have waited 20 years, but of course as Dr. Hutchinson told me, the young do better than the old, so I guess it does make sense to take the meds sooner rather than later. Especially in my case when you had the tougher version of the disease, which takes 12 months of Interferon and Ribavirin treatment, not just 6 months, and which of course is only cured 50% of the time, compared to some of the less aggressive strains of the virus which are closer to 70%. But had I known about these side effects and the advent of Telepravir which is supposedly right around the corner and lightens the load of the interferon and ribavirin one has to take, I may have waited.
I am very grateful to be free and clear of the virus of Hep C though, and what’s more, Roche actually paid for my entire one year prescription, which would have been 3k x 12, or 36k I sure as hell did not have. Still… my motivation is drained constantly. Fatigue is always with me, no matter how much I work out or don’t work out, and my memory, both short and long term are definitely affected. The irony is that the brain fog I have is so closely associated to a hangover I may as well have kept drinking. I often wonder if I did some cocaine or amphetamines like I used to (which is of course why I got Hep C in the first place) if it would reconnect all those neural synapses or whatever the hell. Who knows. I know a girl who went back out and used Adderall for a while, and she seemed sharp for a little while, but as fate would have it, she just last week got another DUI so there goes that one million and fifty fifth excuse to relapse, drink and take drugs… foiled again! haha….
Anyway, so yeah, I reported my side effects to Roche, though I doubt anything will ever come of it, and to be honest, I am grateful the virus is gone. I mean I feel better than when I was on Interferon for sure, but what I wouldn’t give to feel sober, healthy and as lively as I was prior to the treatment. I mean it really was night and day, and I wish there had been an easier method of getting rid of the virus.
I wish someone would do an actual scientific study on Ozone, and Anthony Kiedis and Steven Tyler would both come clean about how and why they both choose to treat it differently.
I wish the tests would show that something was different with me, but all my tests come back saying I’m perfectly healthy, and yet hear I am, every single day, brain fog, tired, waking up with a headache and taking more than 8 advil a day. One day science will have something to definitely indicate the differences in patients pre and post interferon but apparently for now, the benefits, or being cured of Hep C, most certainly outweigh the consequences, or dying of hep c, and of course, not having any measurable side effects. Who can blame dr’s for thinking it doesn’t cause differences if here I am feeling like shit all the time, but completely incapable of proving it to anyone.
Oh the quote, haha, that refers to the Hep C, Liver Biopsy or sword inserted into your side, no fun at all, and though considered minor, very majorly painful. Read my book Hippopotamus Sea: My Viral Sobriety to hear my entire Hep C, Interferon, recovery journey through alcoholism, drug addiction, and of course Hepatitis C, and I give it away 100% free on http://www.books4free.com , it aint no scam, just a site that allows you to read my life story for free, and it’s also available for sale on Amazon and Smashwords for very cheap in hard back, and digital on smashwords.
-JB Smith
JB Smiths Blog - Author @ books4free.com 