Posts Tagged ‘Interferon Blog’

Post Interferon Syndrome vs Celexa 20 mg – 90 days in… thereabouts…

Posted: April 14, 2012 in Uncategorized
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Lets see, that has to be about right, maybe 60 days because I guess I started taking the Celexa at the end of January and now we are rounding mid april so probably 70 days or so. The great news is that I rarely have the major stop me from functioning headaches anymore, taking the pain level from an easy 8 or 9 to a most days nothing at all and when the headaches do return it is a mild 2 or 3, not the all encompassing pain I experience full well half my days for so many years Post TX. Is it the medicine, or perhaps just the amount of time now finally getting on close to 4 years post TX, I really can’t say but I’m too scared to try and stop taking the medicine. I’m much less manic, much more focused and consistent and I’ve been outperforming at work and doing well. Save a couple of emails from disgruntled cheap shot customers, lol, in one I called my VP of Sales the price Nazi and since he was out I could offer an incredible price and the stupid customer sent it to my boss, the little pain in my ass, I was called in and reprimanded. Since when is Nazi a bad word… Oh well, who cares, life goes on.

The major downside of Celexa I’ve noticed though is that I’m not as driven and or motivated if you will. I’ve written almost nothing, nothing in the blog, books, barely anything in my own personal journal. I do my job well enough, even put in the extra hours for fear of being laid off yet again in this fickle economy, but as far as extra curricular, the gym, the blog, the meetings, I have been barely getting by.. And the meetings. the thing that has literally held me together the last five years, well I will be honest, on Celexa, while I still go, I don’t really feel like I get as much out of the meetings as I used to, don’t feel as compelled to share, and don’t leave with the sense of accomplishment and well being that I used to… now it’s just a blah feeling… but no headaches. Hard to weigh the pros and cons. I mean I’m not going to stop taking Celexa, I simply can’t. But there is a lot to be said about losing the drive to write, work out, or go to meetings and be passionate….

Also peeing. Urinating and orgasms, now take effing forever. Sometimes I’ll have to pee really bad walk in the bathroom and sit there for five minutes just waiting and waiting… weird side effect. In addition my super regularity is gone, as you could have timed the stock market on my morning movement prior to Celexa, and now, who knows, sometimes its a few days, sometimes its daily, which is strange for me.

Are those symptoms things worth the headaches being gone? Hard to say. I guess I’ll keep on keeping on, grateful that I’m cured of Hep C and alcoholism, or daily reprieve or what have you, and just be glad that something, anything was able to treat the headaches at all… for if this thing treats them one way, perhaps Lexapro, or Wellbutrin will treat them another, and I owe it to myself to explore those ways as well. Hope is better than despair I suppose, and headaches for years was starting to get a bit desperate for sure.

I’m grateful I’ve found something, but am definitely open to the possibility that something else may treat them better, and this time at least it will be nice to know I can fall back on the Celexa, should the headaches return. Also I may as well use whats working for a while at least, or hell for economic reasons at least wait until Lexapro has a generic.

– Jared Bryan Smith

Post Interferon Syndrome – Headaches and Celexa (Citalopram)

Posted: March 4, 2012 in Uncategorized
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So I made the move back to civilization from the mountain house, and I’m loving the new apartment and the new job. More than anything, all the fear wrapped up into not being able to perform at the new job is beginning to dissipate as the Post Interferon Syndrome headaches have been so diminished with the new meds. After Interferon I was so shocked to have that brain fog penetrate through and destroy my quality of life for many years after I stopped Interferon. I mean it sucks even worse because the doctors won’t admit it’s happening, blame it on other things, and tell you such idiotic things as, “Just take a multivitamin” or when you tell them about your symptoms kind of look down their nose at you and state “Well, if you say so.” I mean it’s quite remarkable really, how online you can find multiple people suffering from an almost universal diagnosis, and then go to three educated doctors in a metropolis like Atlanta, and have your General Doctor, your Gastroenterologist and your Neurologist, all basically say Interferon has no lasting side effects, so this must be an anomaly or just in your head, or even that you’re being a hypochondriac to the point you almost question it yourself. But I wrote about it, I journalled and I was even able to stop working for a while, move out of the city and see if it was allergies, pollution or something I hadn’t thought of, and the headaches persisted. I was still, 3.5 years later suffering from brain fog type headaches at least 66% of the time, which made selling, or making cold calls very tough if not impossible. So in 2012, facing a new job, a highly micro managed job, I was really scared I wouldn’t be able to perform because of the headaches. Two or three weeks into it, I was still suffering 2-3 days during the week, so almost out of hope, I decided to take a scientific practical objective look at what meds might possibly do for me. This is despite my being a member of Alcoholics Anonymous and opposed to being on any mood altering substances. I had tried anti depressant while I was beginning Interferon and I had been so early in sobriety, I felt like it made me more squirrely and even so uncomfortable that it made me think of drinking more often, and trust me at one year sobriety, I wasn’t in a position to be flirting with that possibility. Especially as I was just starting my battle against Hep C, the disease which attacks the very organ my liver uses to process alcohol. So my attempt at mood altering substances, or anti depressants had gone so bad I just was afraid they would make me want to drink again, but at 5 years sober, the headaches practically making me an invalid, I finally decided, hell or high water, I would give several different substances, 90 days or so, give them a fair shake and see how much better or worse I felt, just so longed as I didn’t drink or drug, it was worth the experiment. I’m glad I did.

It’s mind boggling how well Celexa works in combating my constant headaches. I mean it just doesn’t make sense it’s so effective. The first week or two was weird as I was adjusting but after I got over the hump, I mean to tell you the brain fog headaches I would rate as an 8 or so, fell down to around a 2, and the frequency of around 66% of the time or 2/3rds of the time walking around trying to function in pain has been reduced to around 1/10th of the time. They also gave me Prodrin to combat the migraines, the other kind of headache that actually significantly went away when I quit smoking 2 years ago, and it’s basically caffeine and a ton of Tylenol, but that too does the trick on that particular kind of headache. I am just so grateful I held out and waited, and found something that finally worked. I will give this another 90 days or so, or maybe even after that explore other ones to see which one I function the most highly on, but this is like a minor miracle to me, because I was suffering for so long, in so much frustration and pain, and I thought it would never end. I still don’t understand it. Could it be I was so depressed, or so chemically imbalanced it actually caused physical pain to my brain. I mean that looks like the case but seems far fetched and unlikely, however, I am not a chemist, a doctor or even educated about such things. All I know is it killed my headaches, made my life functional again and I am grateful.

I was written too by someone recently stated they had to go back on oxys because of their post interferon pain, and let me tell you man, I can relate. I was an opiate addict for a long time, and I write about that part of my life significantly in my book Hippopotamus Sea, however, I am not going back to that shit, ever again. Not saying I haven’t been tempted over the last 3.5 years though, I thought about it at least once a week for sure. It just isn’t an option for me anymore, I’d sooner eat a bullet. Just like any drug, I need more and more, for less and less effect, and it’s what caused all this bullshit to begin with. I’m not ever going back to that, and if you’re suffering I beg of you to quit the opiates and try Celexa, for some reason it really helped me with my post interferon symptoms. Opiates and drinking, relapse in general is not a viable option, period the end. Other than catastrophic surgery and taking the meds with sponsor supervision, we with the disease of addiction can not flirt with pain meds or drugs effectively, and even with the Celexa, I was in constant contact with my sponsor and letting him know exactly what I was trying, and he was aware of every decision I was making. Accountability is key in sobriety, and no matter the pain, there is no excuse to going back to opiates, drinking or any kind of narcotic. With us to use or drink is to die.

That being said, I do still feel a bit anxious from time to time on Celexa which makes me want to try Lexapro because I hear that it has an anti anxiety portion, and now my mind is much more open about the capabilities of these meds, whereas before I thought it was a block to your higher power, and the sunlight of the spirit, now I’m glad my headaches are gone regardless. Actually the Doctor had suggested Lexapro, but they didn’t have it in generic, and therefore the insurance company changed my prescription, or rather made me call and get the Doctor to change the prescription, which in itself is news worthy. Who the fuck gives the insurance company of none doctors the ability and power to change my medications, solely based on cost. I mean, it’s really an outrage. They say Lexapro will have a generic within the year though, so I’ll just continue on Celexa, record the symptoms, and then compare once I switch over later on.

I am still glad I found a baseline before using them, but I mean, Post Interferon, meetings and step work just wasn’t killing the headaches like it killed the urge to drink early on for me. Everything happens for a reason I suppose.

– Jared Bryan Smith

Natalie Cole’s Health Battle With Hepatitis C w/ Mary Hart on The Early Show… “That Interferon is really serious.”

Posted: October 21, 2011 in Uncategorized
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Great to see she is finally addressing her Hepatitis C. I wonder how many years total it lay dormant? What a hell of a disease. She walked around for 20 years just fine and then it hits her like a mack truck. Well I’m glad she’s speaking openly about it and doesn’t credit sloppy tattoo parlors like ole Gregg blames. Truth is one hell of a character trait these days, and Natalie seems to be facing things head on and without shame, and that is awesome. Also great news that she’s doing Interferon and not Ozone or Nitrus Oxide for Pete’s sake like Anthony Kiedis from Red Hot Chili Peppers, but actual Interferon like we all are told to do. I hope to hell she doesn’t suffer the post TX, or Post Interferon Syndrome so many of us are going through now. I blogged a bit about it on medhelp which is available via the link below, and basically as I state it seems to affect clear thinking, headaches, joint pain and the like. Nothing new, but still as far as I can tell being totally ignored by the medical community as a whole. And what’s good news for Interferon patients moving forward, is with Telapravir hopefully that number of people suffering from Post Interferon Syndrome will be even more dramatically reduced. It’s good news for people in general, but it doesn’t really help me or the others who are suffering extensively, from symptoms that are hard to prove, but exist in a multitude of us, as is reflected in this forum:

http://www.medhelp.org/posts/Hepatitis-C/Long-term-side-effects-of-interferon/show/866107

I just read someone state simply : “Had I known the fog Interferon would put me in, I would have made my peace with God and enjoyed what little time I had left.” Someone else stated, “Yes my husband beat HCV over 10 years ago but now lives in a constant state of depression.” Those are just in the last few handful of posts. I certainly don’t wish for Natalie Cole to experience any post TX symptoms as I have, but if she does, or if Steven Tyler or Gregg Allman did and spoke up about them, maybe somebody would listen.

On the forum it talks about the Mayo Clinic recognizing Post Interferon Syndrome as a real issue, but it was never documented, cited, ie proven. I would like to see real research done to see if it affects hormones, blood levels, immunity, etc. Everything seems to be out of whack for me and obviously we’re not imagining it if there are hundreds of people from all over the country explaining the same symptoms. I’m around 3.5 years out from Interferon and still wake up everyday with a massive headache, I mean, that is not normal. Perhaps Natalie Cole will experience some of those same issues and begin to be a voice for folks, for God knows nobody else has done it.

There is a Doctor who posted even in that Medhelp thread, but I reached out to her personally and she didn’t respond. Her explanation of side effects is stunning, it’s worth reading, but basically she talks about not being able to complete the multitasking she used to be so capable of and having to resign as a Doctor of Medicine. I mean, you would think she would have the leverage to get people to listen, but I guess you’re talking about a multi billion dollar pharma industry, and these guys have power. Pharma is the Crown Jewel of the American Industrial Empire, and I suppose they aren’t about to take down a multi billion dollar line of products, especially when no matter what our complaints, it’s better for public health to get rid of Hepatitis C, than it is to wait until the “cure” has less long term permanent side effects. For the greater good, better to cure it now, stop it’s spread, than worry about what that “cure” does to people’s brains, especially when on paper, and through standard blood work, it looks as though they are fine. Those permanent side effects are much more difficult to measure, in fact it would take comprehensive aptitude tests taken before and after, and that doesn’t really fall under the gastroenterology field, they would need to bring in Neurologists and maybe even Psychiatrists to really measure brain function before and after Interferon and again, it still wouldn’t be better for the public, greater good, than curing it, no matter what. Still, telling people, they will only suffer “flu like symptoms” for a 12 months, is a bald faced lie. If I’d known a fraction of what I know now, I’d have at least waited until it was a more pressing case of Hep C before starting Interferon. Now that we are here though, I just want to know if there is anything we can do to improve our state of mind moving forward. Hormones, steroids, vitamins, anything.

Sadly without a voice, I don’t believe a single study is being done to even qualify our issue as a valid one. It could all change in a New York Minute though, and I do read of lots of people who don’t suffer these symptoms. Maybe it was because I administered these shots myself for 48 weeks, maybe I overdosed a couple of times. Lord knows I’m an over achiever, and overdosed  a few times on the recreational stuff, though never significantly enough for death or a stomach pumping. Still perhaps my lack of health insurance and self-administering exacerbated the problem. I don’t know. Maybe it will clear after year 4 post Interferon. God I hope so, I really wish I didn’t get the headaches and brain fog. Maybe someone with credentials, or fame will give the syndrome a voice, and we will get studied and fixed. I don’t know, I’m gonna keep on keeping on, I didn’t get sober to bow out or give up, but this is certainly been challenging as hell, it’s persistence daunting.

And again, even with all that said, I am glad to be Hep C free. My liver enzymes were through the roof, and a friend of mine just had his come back after going through Interferon twice, once for a year, and once for a year and a half, and it’s come back. Now they think they’ll treat with Telaprevir. And he states he doesn’t get the brain fog, so it’s just weird. I’m glad it’s gone, and I’m glad he can treat now with Telaprevir with odds of 80% instead of 50%. God willing he’ll beat it, and God willing this fog and pain will fade away. I am grateful to be alive, I just wish more was being done to address the long term implications of Post Interferon Syndrome so many of us seem to be experiencing.

If you haven’t please check out my journey of sobriety, Hep C, and Interferon for free on http://www.books4free.com and of course on Amazon:

– Jared Bryan Smith

Gregg Allman – Hepatitis C – Latest CNN Interview

Posted: July 14, 2011 in Uncategorized
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I’m too lazy to go look but I wonder if his albums sell under the huge multimedia Time Warner banner?

He STILL denies having gotten the drug through any kind of drug use, and even adds, “It doesn’t much matter how you got it, you got it.” And this is true, but MUCH more people get Hepatitis C now a days via needles and or sharing straws, which never occured to me while I was out there drinking and drugging, than do by using dirty tattoo needles. Ironically, I just returned from Macon GA and for some reason I believe the bucket story now. That probably is exactly how he got it, and ohhh how disgusting.

It is still humble and cool of him to come out and speak about Hep C, and that he’d gotten a liver transplant of a 29 year old liver, and even more shocking I thought, was that the CNN announcer mentions that he still has Hep C, and that he is living with it. So he was not cured of the virus at all? I wonder if they will try and run him through the new Telaprevir with the higher success rates. I hope so, I hope they can clear him of the virus as they did me, but as Dr. Hutchinson from Duke told me “the young do better than the old.” I wonder what his prognosis is for Interferon with the new drugs, and if the liver transplant makes it impossible to go under Interferon or somehow prevents the full blown chemo like side affects? Still, I may have been a little harsh when I blogged about Gregg before, denying any drug use and stating that he’d gotten it from dirty tattoo needles. In the big scheme of things, it doesn’t really matter how you get it, none of us invented the disease, it matters what you do with it, and if you man up and fight it, quit drinking, and persevere through all the long odds to beat the nasty little beat me down.

Still, I’d be happier if he’d use his name to go out and promote free Interferon use with Telaprevir to all, I mean, they shortened the length of time, doubling the odds, but also doubling the cost. Most of us don’t have Rock Star retirement plans. And it’s the kind of thing that with a concentrated government effort, they could eradicate just like polio, instead of just bilking people left and right.

Let me tell you too, if I find out he’s working for Roche or Merck and this was a publicity stunt for some new medication they are charging triple for, and he still couldn’t admit he’d gotten it using needles, then I’ll be just as irritated. Or to find out his rock star royalty got him the transplant liver faster, that would be just as aggravating. On this one it is probably better I don’t do any research. For now, Gregg has my compassion and sympathy and even my thanks for doing this interview, regardless of if it’s connected to his record sales, and/or paid pharma giants, more than likely even if all that was true, his agent just tugged his heart strings and Gregg was just doing what he thought was right.

He’s still one of the baddest musicians ever to walk the planet. I pray his recovery from Hep C and his transplant stays strong and that he’s able to go through the new Interferon treatments with telaprevir and beats it.

-Jared Bryan Smith

“The weak can never forgive. Forgiveness is the attribute of the strong.” Mahatma Gandhi

Posted: June 29, 2011 in Uncategorized
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Woke up feeling refreshed and recharged, better than I have in several days. Probably because I worked out a small feud with someone whom I really never had anything against to begin with, but whom I did repeat a nasty rumor I’d heard, thus inciting a grudge that lasted way longer than it should have, and had farther reaching ramifications than I could have ever imagined. We made amends to each other and damn if I don’t feel 10 times better for it for my part.

Reminded me of a christian value that I wish I had followed earlier, because it really did bring an instant peace and calm into my life as soon as we were done talking.

Matthew 18:15 “Moreover if thy brother shall trespass against thee, go and tell him his fault between thee and him alone: if he shall hear thee, thou hast gained thy brother.”

Pretty moving stuff… and just a few sentences later:

Matthew 18:19 “I tell you that if two of you on Earth agree about anything you ask for, it will be done for you by my Father in Heaven. for where two or three come together in my name, there I am with them.”

Well that parable to me, sums up the magic of an AA meeting perfectly. For years I would try to get sober all by myself and never get more than 2 weeks, tops, and then my very first half ass try into AA, where two or more people are trying to accomplish the same goal, and lo and behold I was able to stay sober for a month… and that was without getting a sponsor or working any steps… The forgiveness thing, for me anyway, is more in the Masters / Phd realm of AA, as my anger, once up is really hard to get back down… but I don’t have to think my way into right action, I have to act my way into right thinking, and the act of forgiveness, humility and an open conversation with my brother in sobriety, brought about the forgiveness I wouldn’t have thought possible.

And even if you must discount the religious mumbo jumbo, I found science to back the claims as well, the positive affects of forgiveness transcend even religion, and stab deep into the heart of science as well.

“Dr. Robert Enright from the University of Wisconsin–Madison founded the International Forgiveness Institute and is considered the initiator of forgiveness studies. He developed a 20-Step Process Model of Forgiveness.[4] Recent work has focused on what kind of person is more likely to be forgiving. A longitudinal study showed that people who were generally more neurotic, angry and hostile in life were less likely to forgive another person even after a long time had passed. Specifically, these people were more likely to still avoid their transgressor and want to enact revenge upon them two and a half years after the transgression.[5]

Studies show that people who forgive are happier and healthier than those who hold resentments.[6] The first study to look at how forgiveness improves physical health discovered that when people think about forgiving an offender it leads to improved functioning in their cardiovascular and nervous systems.[7] Another study at the University of Wisconsin found the more forgiving people were, the less they suffered from a wide range of illnesses. The less forgiving people reported a greater number of health problems.” 

I am glad it is behind me, once and for all, I truly wish my brother in arms, traveler on Earth with the same disease of addiction as me, the best sobriety has to offer.

Jared Bryan Smith

The creative habit is like a drug. The particular obsession changes, but the excitement, the thrill of your creation lasts. -Henry Moore

Posted: May 5, 2011 in Uncategorized
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The recovered drug addict/alcoholic such as myself, is apt to find that even without drugs and alcohol, he is still quite capable of obsessing over certain things. With 4.5 years of real sobriety now, I’ve obsessed over everything from WW2 strategy games, to my book Hippopotamus Sea which took three years to write and finish. The most dangerous of all obsessions, the female human being, is another matter indeed. The latter is by far the most thrilling and exciting chase, but also as it turns out the one with the highest stakes.

Recently I’ve been receiving odd mail, not hate mail, but definitely negatively barbed emails from a variety of sources, and one of them I found particularly amusing. Supposedly from a lady in NC, she said I “lose credibility” while writing about getting  over the girl I obsessed over recently and wrote about in the blog. Credibility to who? Who am I trying to be credible too exactly? I’m a recovered junkie for fucks sake. I quite openly admit I’m an ex addict, opiate, cocaine, alcoholic survivor with qualities of Obsessive Compulsive Disorder, which I honestly believe MOST if  not ALL of us in recovery suffer from, so exactly how would writing about those symptoms make me less credible? Hmmm… it’s kind of like being written to in broken English and spelling errors in which the message says, “Your dum,” instead of the way it should be written: “You’re dumb.” Miss spellings and grammar issues aside, if you don’t understand why an addict would write about his obsessions, and how he intended on getting over them, go fuck yourself, or better yet, don’t read my blog.

Progress not perfection, and though yes, getting over the last was a challenge, I do believe I’ve learned many valuable lessons, and I assure you, the lessons being recorded, and timeless as the internet is, are more valuable than the so called credibility of one  naysayer who would prefer I bottle it all up, and or write it in a journal. Lol, the funny thing about that journal comment that was mentioned to me though, is that, I do also journal, every single night, in what is basically my tenth step work on a nightly basis. I began writing in this particular journal the day after me and said obsession split up the first time, so August of 2010. 2/3rds of that book is about the pain of loving someone who doesn’t love you back. Now to go from August to December beating your head against a wall is a long fucking time, but having that written history privately, and yeah, that shit is unpublishable is good, but writing about overcoming it here, is just as valuable. What I’ve written here, is humbling, humiliating, embarrassing even, but also good for me to have written, processed and published.

For one thing, in 20 some odd years of dating women, having only fallen for three or so in my life, this is the very first time I cut the cord, told the person to leave me alone, and to never contact me again no matter what and then actually stuck with it. That is progress not perfection. I did that in early January and I was right to do it. I could tell she was lying to me, and my gut instinct was right. Within a couple of months that would be proven right beyond a shadow of a doubt. Valuable lesson: always trust your gut.

Secondly, though it wasn’t all at once, the obsession did slowly begin to lift. Rob an obsession of it’s fuel, IE speaking to them, seeing them, etc. and just like with alcohol, drugs and nicotine that obsession will slowly lift, and you will slowly see through the obsession and into the truth of the matter. I wasn’t being loved, I was being used. My perception allowed me to see any relative act of kindness as love, but the reality, which all too many people in my network told  me, was that I was being played, and though I didn’t want to believe that, as I put time and space between me and the situation I slowly but surely began to see that.

Thirdly, praying and following my intuition about finding a Godly woman of the same faith as mine, opened up doors I could have never imagined. I began attending a good church and met a ton of good new people, and though it is different and not anything like my expectations, it is good, and it is where God wants me to be, just for today, which I can accept. The whole process has taught me a lot. The last woman I loved before this, Gwen Evere in the book, took my soul to a new depth of depravity and hell I thought would I never reach, and I feel like at 4.5 years sober this was another lesson, or even a test, and had I not cut the cord in January, I would have set myself up for even more pain and suffering than I had to go through anyway.

Removing the fire, or stopping seeing her, avoiding her, not talking to her, being disconnected from her in every way, really helped out. She added the final nails in the coffin in February when her ex came back on the scene, who was never far removed no matter what she had told the world, her friends or her family, and with finality she removed me from facebook. Funny that it stung, irritating to the pride and ego, I hadn’t spoken to her once, emailed, called or texted, but she felt it necessary to remove my facebook connection. That was a blessing too though. Her face had continued to pop up on that upper left hand corner, facebook prodding and laughing at me, it was good that she ended even that subtle communication. Good for me anyway. Valuable lesson: Cut ALL ties, including facebook, texting, email, EVERYTHING.

I continued praying for her, for her happiness, for her sobriety, and praying for the obsession to be removed, but it was still pretty intense.

“I do not think that obsession is funny or that not being able to stop one’s intensity is funny.” ~ Jim Dine

There were times in early to mid February that I was hurting pretty bad. God put some other things in my life that kept me sane. Church, work, and I dove into step-work to get out of myself, but I was still pretty angry.

Time takes times as we say though, and by early April, I finally felt like myself again.

Just like with sobriety, my serenity came piece meal, in waves, not all at once or all encompassing, but in bits and parts. I remember early on in sobriety I would get like one day of relief and then have a week of obsessing over drinking and drugging. Then I’d get two days and feel relieved, amazed even, but then experience a week or two even of obsession, but I would cling to that day or two of serenity, of peace, because it would be like proof, like the example of what I was striving for. And ultimately that is how getting over this woman was, it was the same process, I had to do it, no matter what, because just like active addiction, of alcohol or heroin, this emotional pain and distress was killing me, and I couldn’t go on with it, it hurt too fucking much. So I would take what little peace I had, cling to the idea that it was just a sample of the future peace and serenity I would get if I stuck to the path, and continued on my way, and sure enough, just like with drugs, alcohol and nicotine, my obsession slowly lifted.

Still, occasionally cravings would return. I hadn’t thought of her in two weeks easy and was coasting along beautifully, when she walked into my candlelight meeting to pick up her nine month candle, and fuck if that didn’t send my heart through my chest. I was mad at myself, mad at my inability to control my emotions, and mad at her, for looking at me like I was some kind of evil bastard. That glare was so powerful, I swear if looks could kill I’d have died on the spot. It was like being in early sobriety and walking into a room where everyone was smoking kind bud, drinking your favorite beer, and listening to your favorite music. All the lie was out to see, and none of the truth of your disease, that the addiction was out to kill you was hidden, just the beauty of it all, just the deception.

Time takes time though, and all I could do was be grateful that I’d had the brief reprieve I’d had, and hope that it would continue to get better and better.

It has, and finally, after five months, yesterday, I saw her best friend at a Starbucks and I could have sworn I saw her, sitting next to her, because all I could see was the top of her little blond head, and for the first time since January, my heart didn’t go through my chest. My blood pressure didn’t even change. I can honestly say I’m over the whole bullshit obsession. The funny thing too, I went to write that down in my journal last night, and it was the VERY last page of my journal, the book of pain is finally closed, completely and categorically. The emotions 100% tempered. I thought the entire time my roommate and I were in Starbucks that she was out in the parking lot with her friend and I had no desire to see her, speak to her, or even glance that direction. The funny thing is when we were leaving it turned out it wasn’t her at all but her friends kid, who is a blond, so it wasn’t even her, but regardless, the emotion was gone, cooled, controlled. Thank fucking God…finally.

Irritating that people read shit I posted months and months ago, or a poem that clearly states it was written months and months ago, and take it for my present state of mind. Or think that I give a shit what some stranger in NC thinks of my credibility, truly, I am brutally honest, I know this, I don’t seek or need or want your approval.

Getting over a woman completely and utterly in just less than five months, sure as fuck beats the 7 years or so it took for me to get over Gwen Evere. For me, it is huge progress. If I lose credibility with whomever the fuck reads the earlier postings as I was going through the obsession, oh fucking well. The idea of this blog is to be unique, original, and brutally honest. It is also supposed to help other men, not the women of AA, as I wouldn’t know the first thing about their emotions, nor do I suspect do they. My plan, though a day at a time, is to outlast my disease and die sober, and being that I’m 33 that will make for some pretty good, albeit intense, life lessons, that I will publish and make available to all those that are interested in how to face challenges and overcome them in the program. Every fucking guy I know in the program with real long term sobriety has faced woman issues, and more specifically, obsessions with them, and/or sex, so if I lose credibility by being honest, instead of acting like some fucking holier than thou guru, I really don’t give a shit. The only credibility I seek is that of being just another bozo on the bus, just another garden variety drunk, and I’m glad my writing still gets feedback and comments and all that shit, because it means people read it. In fact, we broke a record the other day with 1435 people reading the blog, so to the one jackass retard who thinks I lose creditability for being honest… blow me. Blow me enough and maybe you’ll be my new obsession, lol.

The very point of all of this is to live and learn, and if I fancy it all up and put lipstick all over the pig of my obsessions, it would have been a lie. I’m not unique in feeling obsessions over a woman in AA. Someone saying “Oh he’s obsessed” is fucking comical. If you aren’t obsessed with something in recovery at some point, you’re a sociopath, or most likely, just a fucking hypocrite. Remember, whenever you point the finger their are four coming back at you. For me, it is amazing progress for me to have first cut the cord on the obsession, and second stuck with it until it was 100% totally gone. I’ve written it in here as a record of how I did it so that someone else may learn from the experience and hopefully apply the same lessons. If you believe you are better than the VERY common symptoms of alcoholics around the globe, well good for you and God bless your little heart, I hope you stay holier than thou for as long as you can, because if you don’t have the humility to relate to what I’m writing about, you will very probably experience some of the same exact turmoil. Lets hope that you can get through them as successfully as I have, because love me or hate me, I’ve accomplished quite a bit when it comes to sobriety, including, getting over the urge to drink and drug, finishing a year of Interferon, defeating Hep C, losing 50 lbs, quitting smoking, running half marathons and more. You may not like me, but you may just find we have more in common than we do apart.

We are all sick people trying to get better, and the only reason I write this is to try and help others, just as others have helped me.

Thank you God for giving me the strength to persevere, and overcome ALL my obsessions. At 4.5 years sober, I’m still just as capable of obsessing as I was when I came in, but having gone through this last year, I now know that there is NOTHING on God’s green Earth that I can’t get over, given enough time, patience, and endurance. I truly have faith that ultimately you have a good plan worked out for me better than any that I could possibly imagine. God’s will not mine be done… And thanks for the Osama kill, we needed some good news.  ; )

-Jared Bryan Smith

“…every atom in your body was once a part of a star.” – Andrew Niccol

Posted: April 9, 2011 in Uncategorized
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‎…and the atoms in your right hand are from different stars than the atoms in your left hand, different galaxies throughout your entire body even. Einstein said “Time only exists so everything doesn’t happen all at once.” Haha…awesome.

There is quite obviously to me, an underlying force in the universe today, and always, bigger than I could have ever imagined. So get busy living or get busy dying. The magical mysteries of this world are fucking amazing. Coincidence upon coincidence, fate bumps into serendipity and my life, in sobriety, just gets better and better every fucking day.

A couple of weekends ago I took my son up to Chattanooga to go fishing with my brother, his uncle. My brother and I got to talking about women, and he’s dating a 21 year old blond dutch women whose smoking hot, and he says to me, “And Bryan, guess what it is we have in common.” I look at him and without flinching and say “Both your fathers killed themselves.” He said, “How the hell did you know that?” I have no fucking idea. From our Big Book, … “for nature and God alike abhor suicide.” Drinking and drugging it slowly to death or the one drastic action all at once, nature and God alike abhor it. Maybe my spirit just knew it was that terrible of an act from the tone of voice he used, maybe God gave me the forewarning thought. Perhaps, string theory really exists and our thoughts are all connected on strands of physical wavelengths we just haven’t proven yet and as someone near me has a thought we all share it. Maybe therein lies the strength of the program, that my thoughts of not drinking plus your thoughts of not drinking, plus the string attaching us, or the bond connecting us make us stronger, hell maybe the bond, is all the REAL strength their really is. And so 1 + 1 = 3 . God knows I couldn’t quit on my own, and God knows it was a breeze once I finally surrendered and did what I was told, made 90 in 90, got a sponsor and did the work. I don’t know what makes that telepathic magic. What makes ESP happen from time to time, or hell even what makes me yawn after someone near me does, even if I don’t see them do  it. But it happens and because it happens, even now in my sober life, at 4.4 years sober I’m just as big a faithful believer in magic as I was when I came in. Later that day, a few weeks back, it was the biggest full moon in something like 18 years. I was cooking steaks for my brother and son who were inside my brothers house watching television and I remembered about the moon. Instinctively I knew I wanted to look up and see the moon, but it was too early for it to come up, but still I found myself staring at exactly the spot on the horizon in which the moon would rise in just an hour or so, despite ever having seen a moonrise or a sunrise from Chattanooga, and most especially from his property. How could I have known where the moon was going to rise? I don’t know but I did. This is a world of magic, God’s wonders aren’t a tenth explained, and I’m so grateful to be a part of it all. God is good, and I’m alive to enjoy all this magic, simple as it may seem, that gratitude has kept me on a high for weeks, and it ain’t no pink cloud, it’s just the realization that the same amazing miraculous God who removed the urge to drink and drug from me, and then cured me of Hepatitis C, and then just as easily removed the urge to smoke cigarettes, polluting the most come involuntary human reflex we have, that of breathing, that same God, is in me, and I’m a part of, and he loves me, and through him ALL THINGS ARE POSSIBLE. I mean, this may sound over the top, but this realization as of late, having had the latest obsession, the latest lust cloud my mind for so long, and finally exhaled out, has been huge. This world, indeed this universe, and everything in it, including myself is nothing short of a miracle, and God’s will is good, and I’m so thankful that I continue to grow.

In the rooms of AA we hear people whine about complacency, about the “pink cloud” or how hard it is at 9 months I remember being the first major roadblock people groaned of. Then two years, then 4, then 5 and 6, and you hear people bitch about the difficulties of reaching 10 years, and man, the more I’m in the rooms the more I realize, MOST OF THESE PEOPLE ARE NEGATIVE THINKING NUTCASES. For me, and not just me, but for a select few people I know, the program gets EASIER AND EASIER. My life continues to get better and better. Sure there are speed bumps and challenges, getting over this last woman and dealing with letting go is a perfect example, but once again, inevitably, pain is the touchstone to growth, and I feel better, more complete, more free than I did before I went through the entire process with her or the last one. I just keep learning, and I just keep becoming more and more complete, more and more confident in God’s will for me, less and less concerned with my little plans and designs, and just overwhelmingly trusting in the process, and the fact that God’s ultimate will has my best interests at heart. That he could very well end me up on a beach surfing somewhere, occasionally teaching the word of God, or leading meetings or something just amazing, and better than I could ever have planned, and maybe that doesn’t even involve a woman, and if not, so be it. In the course of my history women haven’t brought me a whole lot of serenity, and it’s kind of nice and freeing to not have and more importantly, finally, not need one around. It’s almost like quitting smoking or drinking, lol. And maybe one day the right one will come along, and I’m open to that, but in the meantime, the fact that my life in Alcoholics Anonymous continues to get better and better, reminds me that all the nay sayers and whiney bitches in AA that barely ever make meetings then come in and dump their shit on everyone that it’s sooooo hard now the pink cloud is gone, just aren’t growing spiritually. They probably never got off their fucking meds. They probably never worked any steps, they have probably never made an amends, never grown, never done a consistent 10 step every night for years on end. This program of AA is a fucking non stop miracle, and my life continues to get better and better. There is one guy who taught me that the “Pink Cloud” doesn’t have to end, a Christian man and I still look up to him and am grateful that for all the average spirituality going around in the rooms, there are still men who almost tear up in joy every time they share, grateful as I am to be alive, to not be craving a drink or a drug anymore, and to know that God is incredible, awesome, and now, fully, on our side, and entirely capable of miracles.

I believe this is probably the case of the modern marriage as well. That the Pink Cloud never has to end. Neither does the honeymoon. I don’t know this, I drove my marriage into the ground and I haven’t had a real relationship last longer than a month in sobriety, so admittedly it’s sheer speculation, but just as the whiney negative bitches in AA override the majority and put the fear that the latter years in recovery are a struggle, so too I bet are the voices of married couples, focused on the negative, grass is always greener in someone else’s yard defeatist majority out there. Who can blame them, with the Judeo Christian ideals of marriage, God and commitment constantly mocked, with lust used to sell everything from Swiffer picker uppers to deodorant none of us really need, there is enough temptation and media to make the most beautiful couples feel complacent and ordinary. I’d bet though, just like with the program of AA, that I have to work every day to stay in the middle of the bed with, but when I do pays off with results and dividends like I’ve never experienced before in my entire life, a constant endorphin buzz, I bet a real relationship, a real marriage and honeymoon can be the same. With a little work, gratitude, and appreciation can be the essence of magic, can be the elixer of heaven, that a real Godly relationship can be the most awesome expression of God and of love here on Earth that you have ever experienced and that it can stay fresh, and new and grateful, and that with that kind of Godly love, that kind of appreciation of each other and of your creator, you can accomplish any of the tasks or goals God puts before you. I was never so motivated in my life as when I was 18, married, with a new son and a goal to buy us a house and by God, I became the number one salesman of a billion dollar corporation so I know what power God can give you through  the magic of love, through the motivation of his gifts, but I simply didn’t have a clue as to the source or the magnitude of that power early on in my life. I bet now, sober, ten plus years later I  would grasp it, hold on to it, and never let go. And I bet, just like the pink cloud, the honeymoon would never end, and I would love my wife, and serve God until my dying day, and despite whatever speed bumps we might come across I would know to be grateful, and that like everything else, they were just a part of the journey, and that God never put anything before me he didn’t also match in strength for me to overcome. God is good, and I’m simply grateful to be exactly where I’m at, more appreciative that I’ve ever been and ready for the next leg of the journey. As an addict  I was always sinking, but sober,  complete and whole, every experience teaches me something, and I grow more and more complete with each challenge. So then, even the most arduous bullshit, is a blessing in the long run, which actually makes all of life exciting, even the shitty parts!

Thanks for reading this blog post, and for more on my life, my journey through recovery, alcoholism, cocaine, opiate and pharmaceutical addictions as well as my overcoming Hepatitis C, Interferon and sheer madness and insanity here in sprawling suburbs of Atlanta, please read my book 100% free at http://www.books4free.com, on smashwords, or of course on Amazon! Please also leave a review and thanks again for your support!

-Jared Bryan Smith

“A man is never more truthful than when he acknowledges himself a liar.” – Mark Twain

Posted: April 3, 2011 in Uncategorized
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What an amazing day here in sunny Atlanta, after 6 straight days of cloudy gloomy cover, it was great to tell my story at the 11:30 and hang out with a newcomer friend of mine in the rooms, and talk to him about sobriety about life and about the amazing gift of sobriety.

The first principle of the very first step is honesty. We must at least begin to be honest or we will drink again. If I’m not honest about my 1st Step then there is no hope at all for me what so ever. Fortunately for me, in writing out my first step, or all the negative consequences of drinking and drugging, written out was roughly ten plus pages. It was a glaring admission of powerlessness, and when I was really honest, it showed I was also capable of being a thief, a liar, and adulterer, and worse. All things I’d sworn I’d never be. But the disease of addiction twists and warps our thinking, and one lie turns into ten and ten into a thousand. An honest man is often times called a liar by other men, and only the honest man can say, I really am a liar. Because we all are. But in your heart, one always knows the truth.

And God, God knows the heart of every man woman and child on Earth, before your thoughts are your own God knows them, and he knows your every move before you make them. But more importantly God knows your heart. Are you good? Do you wish good of others, are you hopeful for good for others, or are you mean spirited, vengeful, spiteful, angry and petty? Is yours a heart of love or a heart of hate?

When I came into the rooms of alcoholics anonymous it felt like a switch had been turned in my head. That every thought I had was sick, dark or evil in some way shape or form. It felt like hell. I knew I had to change my thinking some way, some how. My sponsor said “You can’t think your way into right acting, but you can act your way into right thinking.” Or in other words, act as if. Even though all I wanted to do was drink and drug, DONT FUCKING DO IT NO MATTER WHAT, act as if the thoughts had already left me, and eventually they had. But they wouldn’t have if I’d acted on them. Eventually those thoughts did go from bad to good, and I don’t spend my days obsessing over dark things, or my mind go to the worst possible scenario at all times, for no reason. I really have had a spiritual awakening, and I’m grateful as I can be about it.

But I had to work for it. I had to be HONEST in all my dealings, in all my communication, with my sponsor, my peers, my friends, my family, everyone. The truth will always come out, one way or another it always has a way of making itself truly known.

Nobody on Earth is above the human condition, but if you can not grasp the first principle of the very first step, honesty, you are not going to make it very far in the program, no matter how much bullshit you spin. Honesty is crucial, there is no work around, and it applies to every move in the program from your stepwork to your relationships, to your communication with a higher power. Ultimately it comes back to buying and selling your own bullshit. If your mind is still manufacturing bullshit on one side, while the other side is buying it, then you aren’t going to be able to win that battle when the urges and cravings come to call and the voices in your head start getting louder and louder.

I have truly fucked up a lot of stuff in the program, but as my book will attest to, I am brutally honest. To a fault for fucks sake, hell I make fun of my own dick size in juvenile pirson I’m so fucking honest, and for a man, that is a big deal, hahahaha…

I digress… for the record that was from age 13-16, and I was a late bloomer… in fact, I’m still blooming… I’m getting older so I’m counting the sag, lol…

Life is good now, I’m 4.3 years sober or there abouts, I’m Hep C free, I’m saved, I’m in the best shape of my life, and I am honest with my sponsor, my family, and everyone I know, my entire life is quite honestly an open book. It’s the only way I know for an alcoholic, addict like myself to be free.

I honestly probably do spend a little too much time on facebook, and I could quit eating so many damn speckled eggs, but for the most part, my character defects are in check most days. That doesn’t mean I can’t be insensitive though, I am only a human being after all.

Thanks for everyone who came to the 11:30 this morning, it was one of my favorite times sharing my story ever. I didn’t expect to choke up crying when thinking about my father, but I guess we should remember the fallen to this disease from time to time, they weren’t always as bad as they were in those last few years, and I miss him very much.

Thanks again for the support, and hope everyone has an amazing weekend, I am eternally grateful for my AA family, and I hope the hand of AA is always what I give the impression of giving to the world, I never do mean any harm, but sometimes bridges get burned even with good intentions. I’m thick headed sometimes so if I said anything to offend anyone at that meeting, or talk too much about drugs, or drop too many eff bombs I do apologize, it’s just how I talk.

-JB Smith

Comprehensive List of Celebrities with Hepatitis C : My personal fav, Linda Lovelace, awww yeah, haha…

Posted: March 19, 2011 in Uncategorized
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Country music icon Naomi Judd opens up about being diagnosed with hepatitis C.

For more information, visit http://www.thedoctorstv.com/

Several public figures suffer from hepatitis C and some have died. Celebrities with hepatitis C, according to news reports:

• Gregg Allman Rock musician and founding member of The Allman Brothers Band

• Pamela Anderson: She is perhaps the best-known hepatitis C patient, if only because the former Baywatch star has such a flair for publicity. Her revelation last year that she had the disease prompted innumerable news stories.

• Keith Richards–Guitarist/singer/songwriter/producer and founding member of the Rolling Stones. He claims that due to the strength of his immune system he beat hepatitis C by leaving his body to deal with it

• Ray Benson–Front man of the Austin Western swing band Asleep at the Wheel. Benson chose to treat his hepatitis C with Eastern medicine.

• Steven Tyler–Musician and songwriter in the rock band Aerosmith. In September 2006, he announced that he had been diagnosed three years previous and had just completed eleven months of treatment with interferon.

• Natalie Cole–Singer and daughter of Nat King Cole. She was diagnosed in mid-2008 during a routine examination.

• Willy DeVille One of the founders of the band Mink DeVille and a pioneer in punk rock. He was diagnosed with hepatitis C in February 2009 and was found to have pancreatic cancer during the course of his treatment

• Anthony Kiedis–American vocalist/lyricist of the rock band Red Hot Chili Peppers. He contracted Hepatitis C from regular intravenous drug use in the early 1990s and claims he was cured of the Hep C virus by Ozone therapy

• Naomi Judd: The former nurse and country singer has been one of the best-known hep C celebrities. She retired from the Judds, the duo with daughter Wynonna, in 1991. But she has since undergone treatment and become more active.

• Dusty Hill: The band ZZ Top stopped touring in 2000 because the bassist had hepatitis C. The band began touring again in 2002.

• Evel Knievel: The motorcycle daredevil had a liver transplant more than two years ago and later said doctors could find no trace of the virus in his blood.

• Chuck Negron: He’s the former lead singer on such Three Dog Night classics as “Joy to the World.”

• Larry Hagman: The television actor required a liver transplant in 1995.

• Phil Lesh: One of the founding members of the Grateful Dead, the bass player received a liver transplant several years ago.

• “Superstar” Billy Graham: The former WWF wrestling champion got a liver transplant last year. He thought he contracted the virus by being bled on during wrestling matches years ago.

• David Crosby: The rock star with a fabled history of drug abuse is touring again after receiving a liver transplant in 1995.

• Freddy Fender: The singer of such ’70s hits as “Wasted Days and Wasted Nights” suffers from several health problems, including hepatitis C.

• Jack Kevorkian: The retired pathologist, now serving a prison term for killing a man who had Lou Gehrig’s disease, has hepatitis C, his lawyer says.

• Laurie Bembenek: The former Playboy bunny, whose conviction in a Milwaukee murder and later escape are chronicled in the book Run, Bambi, Run, is free now but suffers from hepatitis C.

• Rolf Benirschke: The former star kicker for the San Diego Chargers got the virus from a transfusion two decades ago. He has used his sports status to raise awareness about the disease.

• Linda Lovelace: The star of the 1972 porn film “Deep Throat” contracted the virus from a transfusion and had a liver transplant in 1987. She died in 2002 at age 53 after a car crash.

• Willie Dixon: The legendary bluesman was diagnosed with hepatitis C shortly before his death in 1992. He contracted the virus from transfusions in 1987.

• Alejandro Escovedo–Musician specializing in roots rock/alternative country, diagnosed in April 2003.

• Mickey Mantle: The baseball great is thought to have contracted hepatitis C during a transfusion for a knee operation. He died of liver cancer in 1995.

• Stormie Jones: The 13-year-old died in 1990 six years after becoming the first person in the world to receive heart and liver transplants in a single operation. Hepatitis C damaged that liver, though, and before she died she received a second liver and treatment for the virus.

• Ken Kesey: The author of One Flew Over the Cuckoo’s Nest, who died of liver cancer in 2001, suffered from hepatitis C.

• James Earl Ray: The confessed assassin of Martin Luther King Jr. died in 1998 of liver disease after being infected with hepatitis C, probably in a 1981 blood transfusion he received after a prison stabbing.

• Allen Ginsberg: The poet laureate of the Beat Generation died in 1997 after battling hepatitis C for many years. He had terminal liver cancer.

• Lance Loud: The free-spirited son on public television’s “An American Family” in 1971, he died in 2001 of liver failure caused by hepatitis C and HIV.

• Frank Reynolds: Experts speculated at the time that the newsman’s death in 1983 was hastened by the virus later known as hepatitis C, which he may have contracted through a transfusion.

• Benito Mussolini: Did Il Duce, the World War II Italian dictator, have the disease? A new biography speculates that his chronic health problems — stomach pain, fatigue and depression — stemmed from an ulcer and a mild case of hepatitis C.

• Chet Helms Music producer who helped create the vibrant San Francisco rock music scene in the 1960s. He was undergoing interferon treatment for hepatitis C when he suffered a stroke

• Phil Lesh Founding member and bass guitarist of the rock band Grateful Dead. He was diagnosed with hepatitis C in 1992 and received a liver transplant in 1998.

• David Marks Early member of The Beach Boys, who believes that he contracted the disease through drug use. He campaigns to raise awareness, supporting the UK National Health Service’s “FaCe It” campaign.

• Tawn Mastrey Disc jockey who was the voice of 1980s heavy-metal scene in Los Angeles. She contracted hepatitis C when she was a child.

• Kenny Neal New Orleans blues and swamp blues guitar player. He took a year off from performing while receiving treatment and returned to the Monterey Blues Festival in 2007.

• Chuck Negron Vocalist and founding member of Three Dog Night. He contracted hepatitis C due to “the long-lasting effects of drug use and alcoholism”.

• Gary S. Paxton Bakersfield country and gospel music artist. He contracted hepatitis C through several blood transfusions and almost died from the disease in 1990.

• Curtis Salgado Blues, R&B, and soul singer-songwriter-musician. Developed cirrhosis and liver cancer because of hepatitis C. Six benefit concerts were held in 2006 to raise money for his medical bills

• Tony Scalzo Rock musician and songwriter, best known as a founding member of the band Fastball.

• Uncle John Turner Blues musician and one of the founders of the blues-rock style of drumming

• Randy Turner Lead singer for the seminal hardcore punk band Big Boys.

• Christopher Lawford Nephew of John F. Kennedy, best known for his role as Charlie Brent on the soap opera All My Children in the early 1990s. He was diagnosed with hepatitis C in 2001

• Natasha Lyonne Best known for her roles in the first two American Pie films

•Anita Pallenberg –Italian-born model, actress and fashion designer. Also known as the great influence on the development and presentation of the Rolling Stones from the late 1960s and through the 1970s

• Ken Watanabe Japanese actor best known for his role in The Last Samurai. He contracted hepatitis C from a blood transfusion when he was receiving treatment for acute myeloid leukemia

• Stanley Fafara Child actor who played “Whitey” on Leave it to Beaver. He contracted hepatitis C from intravenous drug use

http://en.wikipedia.org/wiki/List_of_people_with_hepatitis_C

A minor operation is one that is done on someone else – Dr. Richard Selzer (Hep C, Interferon, Pegasys Side Effects Reported to Roche Genentech)

Posted: January 25, 2011 in Uncategorized
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So in the interest of conspiracies and full disclosure, I did just formally complain to Roche Diagnostics, or a division of Roche called Genentech via an 1-800 number and case number *ahem 1462, because I was led to do this by an underground advocate of Hep C and Interferon treatments who are still suffering serious side effects from his Hep C treatment, Interferon and Pegasys, just as I am. So if I disappear mysteriously, let the bread crumbs start here! haha… He also forwarded me the side effects document that I posted on the left side of my blog here under Hep C Side Effects, and I’m grateful this guy is doing something, because 3 years out I am still suffering major headaches, daily and wake up every morning with a crushing pain in my skull, and I have to take 4 advil every single morning. At three years out I’m concerned that this is never going to go away, and in fact has been getting worse as of late.

The more concerning factor is that I’m now not alone, but have been hooked up with a group of at least 20 or so who are all experiencing these major side effects from Interferon treatment. It sucks, and mine, headaches, seem to be on the light side of the symptoms. There are people on this underground list with MS, fibromylgia, chronic joint and skin problems, and more. We’ve read doctors quotes talking about how it seems like anyone who uses Interferon is worse off than when they started. And yet I personally am obviously torn as to how to protest or be letigious, simply because I am cured of the disease of Hepatitis C, which now kills more people than HIV in the United States. So, I’m cured, but I suffer chronic pain. I wasn’t in dire need of Interferon treatment, I could have waited 20 years, but of course as Dr. Hutchinson told me, the young do better than the old, so I guess it does make sense to take the meds sooner rather than later. Especially in my case when you had the tougher version of the disease, which takes 12 months of Interferon and Ribavirin treatment, not just 6 months, and which of course is only cured 50% of the time, compared to some of the less aggressive strains of the virus which are closer to 70%. But had I known about these side effects and the advent of Telepravir which is supposedly right around the corner and lightens the load of the interferon and ribavirin one has to take, I may have waited.

I am very grateful to be free and clear of the virus of Hep C though, and what’s more, Roche actually paid for my entire one year prescription, which would have been 3k x 12, or 36k I sure as hell did not have. Still… my motivation is drained constantly. Fatigue is always with me, no matter how much I work out or don’t work out, and my memory, both short and long term are definitely affected. The irony is that the brain fog I have is so closely associated to a hangover I may as well have kept drinking. I often wonder if I did some cocaine or amphetamines like I used to (which is of course why I got Hep C in the first place) if it would reconnect all those neural synapses or whatever the hell. Who knows. I know a girl who went back out and used Adderall for a while, and she seemed sharp for a little while, but as fate would have it, she just last week got another DUI so there goes that one million and fifty fifth excuse to relapse, drink and take drugs… foiled again! haha….

Anyway, so yeah, I reported my side effects to Roche, though  I doubt anything will ever come of it, and to be honest, I am grateful the virus is gone. I mean I feel better than when I was on Interferon for sure, but what I wouldn’t give to feel sober, healthy and as lively as I was prior to the treatment. I mean it really was night and day, and I wish there had been an easier method of getting rid of the virus.

I wish someone would do an actual scientific study on Ozone, and Anthony Kiedis and Steven Tyler would both come clean about how and why they both choose to treat it differently.

I wish the tests would show that something was different with me, but all my tests come back saying I’m perfectly healthy, and yet hear I am, every single day, brain fog, tired, waking up with a headache and taking more than 8 advil a day. One day science will have something to definitely indicate the differences in patients pre and post interferon but apparently for now, the benefits, or being cured of Hep C, most certainly outweigh the consequences, or dying of hep c, and of course, not having any measurable side effects. Who can blame dr’s for thinking it doesn’t cause differences if here I am feeling like shit all the time, but completely incapable of proving it to anyone.

Oh the quote, haha, that refers to the Hep C, Liver Biopsy or sword inserted into your side, no fun at all, and though considered minor, very majorly painful. Read my book Hippopotamus Sea: My Viral Sobriety to hear my entire Hep C, Interferon, recovery journey through alcoholism, drug addiction, and of course Hepatitis C, and I give it away 100% free on http://www.books4free.com , it aint no scam, just a site that allows you to read my life story for free, and it’s also available for sale on Amazon and Smashwords for very cheap in hard back, and digital on smashwords.

-JB Smith

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