Posts Tagged ‘Interferon’

Gregg Allman – Hepatitis C – Liver Transplant – Interferon – Dirty Tattoo Needle…really Gregg? You’re a rock star, who cares.

Posted: February 2, 2011 in Uncategorized
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Gregg Allman was always one of my favorite musicians, and I used to love getting drunk and high going to Allman brothers shows. Recently I found out he too was a Hep C survivor and had actually had a liver transplant done as well. This article I found on the internet though, is fucking laced with inconsistencies about Hep C, treatment, Interferon, and the like, even calling Hep C an STD which it is clearly not. I have first hand proof that it isn’t, having knocked up a woman years and years ago while still in my active addiction and disease, who then had an abortion, but never got the Hep C that I was carrying back then, thank God I’ve been cleared of it. But surely if it was an STD it would have spread during the conception of a child, but it didn’t. My liver doctor told me of multiple cases of man and wife being married for 20-30 + years and not spreading the virus via sex, and yet major news outlets like CNN can still report it as an STD, just blatantly disregarding facts, and common accepted truths in the medical community. Hell even the AMA took it off the list of STD’s a few years back, and here is all they say about it:

“HCV is transmitted primarily through large or repeated direct percutaneous exposures to blood. In the United States, the relative importance of the two most common exposures associated with transmission of HCV, blood transfusion and injecting-drug use, has changed over time. Blood transfusion, which accounted for a substantial proportion of HCV infections acquired >15 years ago, rarely accounts for recently acquired infections although the risk is not zero. In contrast, injecting-drug use consistently has accounted for a substantial proportion of HCV infections and currently accounts for 60 percent of HCV transmission in the United States and a high proportion of infections continue to be associated with injecting-drug use.”

There article is completely devoid of any STD talk because it is proven not to be transmitted via semen, saliva, or other fluids, only blood…

But because it was mislabeled in the beginning of it’s discovery, the rumor and confusion persists, and even educated nurses will call it an STD, when it clearly isn’t:

Here are several other links basically stating the exact same facts.

http://www.ncbi.nlm.nih.gov/pubmed/15128350

http://qjmed.oxfordjournals.org/content/92/9/505.abstract?maxtoshow=&hits=10&RESULTFORMAT=&fulltext=Lack+of+evidence+for+the+heterosexual+transmission+of+hepatitis+C&searchid=1&FIRSTINDEX=0&resourcetype=HWCIT

And yet still, a CNN reporter and presumably an editor fuck it up as recently as last summer while reporting on Gregg Allman’s case:

CNN by Deborah Mitchell

Hepatitis C, a liver disease in which the organ become inflamed and dysfunctional, destroyed Gregg Allman’s liver, making him a candidate for a liver transplant. The 62-year-old rock and blues legend underwent the surgical procedure at the Mayo Clinic in Jacksonville, Florida.

Individuals can get hepatitis C through contact with an infected person’s blood. This can occur in a variety of ways, such as being born to a mother who has the disease, having sex with an infected individual, being tattooed or pierced with an unsterilized needle that was used on an infected person, sharing drug needles with an infected individual, experiencing an accidental needle stick from a needle that was used on an infected person, or using an infected person’s toothbrush or razor.

Most people do not experience symptoms of hepatitis C until the virus has caused damage to the liver, which can take ten or more years to occur once the infection sets in. Symptoms may include jaundice (yellowish eyes and skin), swollen stomach or ankles, diarrhea, upset stomach, tiredness, nausea, weakness, loss of appetite, dark yellow urine, weight loss, abnormally long bleeding times, and the development of spiderlike blood vessels on the skin.

Allman began treatment for chronic hepatitis C in late 2007, and his doctors recommended a liver transplant because his liver had suffered chronic damage. Most hepatitis C infections become chronic, according to the National Institute for Diabetes and Digestive and Kidney Diseases. Without treatment, chronic hepatitis C can cause cirrhosis (scarring of the liver), liver cancer, and liver failure.

Hepatitis C is not treated unless it becomes chronic. A combination of drugs, peginterferon and ribavirin, is usually used to help slow or stop the virus from damaging the liver. Peginterferon is administered by injection once a week while ribavirin is taken daily by mouth.

According to the National Organ Procurement and Transplantation Network (OPTN), which is operated by United Network for Organ Sharing, approximately 6,500 liver transplants have been performed each year in the United States. More than 15,000 men, women and children are on a waiting list for a donated liver. The details of each candidate’s condition are confidential, although the OPTN can answer general questions about its transplant policy and process.

When chronic hepatitis C results in liver failure, a liver transplant is typically necessary, as occurred in Allman’s case. Drug treatment typically continues after transplantation because hepatitis C usually returns despite surgery.

SOURCES:
CNN, June 23, 2010
National Institute for Diabetes and Digestive and Kidney Diseases
National Organ Procurement and Transplantation Network

So yeah, good work Deborah, way to continue to misrepresent and promote an incorrect stereotype, and kudos CNN on letting it slide.

As for Gregg Allman, you amazing guitarist and hero to so many southerners and music fans out there, why come up with this bullshit story? You sing about heroin, we know you were an addict, we aren’t fucking morons. You could have been so helpful to so many people by stating exactly what happened to you, your struggle with Hepatitis C, your liver transplant and exactly how you got it, but instead of manning up and just admitting you were a junkie, you give the world this crap ass cop out:

“Gregg Allman was diagnosed with Hepatitis C in 2007; he suspects he was infected by a dirty tattoo needle. Allman had been on a donor list since 2008.

Look Gregg, I know getting Hep C isn’t exactly prestigious, but who gives a shit, you’re a fucking rock star. Now that you’ve beaten it, how about it? Tell us how Interferon was? Are you still suffering from the after effects like so many of us are? Are you achy, fatigued constantly with headaches plaguing you every other day, sometimes day in/day out for weeks on end? Do you have brain fog, was your creativity affected? We fucking need a voice Gregg, and you and Steven Tyler just brush it off completely. Worse yet is Anthony Keidis and Keith Richards who claim to have beaten it with good luck and charm, and Anthony rambles on about Ozone and some magical fairy dust or gas, but the rest of us went through hard as hell Interferon treatment, and many of us are still suffering from long term effects of it… the worst of which for me is the brain fog. Are you Gregg? Steven? Or do you just feel fine? Inquiring minds would love to know, cause we could really use a voice. The pharmaceutical industry thinks they’ve got a cure, but may I remind you of the Hippocratic Oath. First do no harm. I am in constant chronic pain, and though Hep C free, that sure as fuck feels like harm. What about you Gregg? I am glad you got your liver and have beaten the disease, but come on man, step up to the plate, there are millions suffering, and you could be a really big inspiration to people. Let us know how you’re really doing.

-Jared Bryan Smith

A minor operation is one that is done on someone else – Dr. Richard Selzer (Hep C, Interferon, Pegasys Side Effects Reported to Roche Genentech)

Posted: January 25, 2011 in Uncategorized
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So in the interest of conspiracies and full disclosure, I did just formally complain to Roche Diagnostics, or a division of Roche called Genentech via an 1-800 number and case number *ahem 1462, because I was led to do this by an underground advocate of Hep C and Interferon treatments who are still suffering serious side effects from his Hep C treatment, Interferon and Pegasys, just as I am. So if I disappear mysteriously, let the bread crumbs start here! haha… He also forwarded me the side effects document that I posted on the left side of my blog here under Hep C Side Effects, and I’m grateful this guy is doing something, because 3 years out I am still suffering major headaches, daily and wake up every morning with a crushing pain in my skull, and I have to take 4 advil every single morning. At three years out I’m concerned that this is never going to go away, and in fact has been getting worse as of late.

The more concerning factor is that I’m now not alone, but have been hooked up with a group of at least 20 or so who are all experiencing these major side effects from Interferon treatment. It sucks, and mine, headaches, seem to be on the light side of the symptoms. There are people on this underground list with MS, fibromylgia, chronic joint and skin problems, and more. We’ve read doctors quotes talking about how it seems like anyone who uses Interferon is worse off than when they started. And yet I personally am obviously torn as to how to protest or be letigious, simply because I am cured of the disease of Hepatitis C, which now kills more people than HIV in the United States. So, I’m cured, but I suffer chronic pain. I wasn’t in dire need of Interferon treatment, I could have waited 20 years, but of course as Dr. Hutchinson told me, the young do better than the old, so I guess it does make sense to take the meds sooner rather than later. Especially in my case when you had the tougher version of the disease, which takes 12 months of Interferon and Ribavirin treatment, not just 6 months, and which of course is only cured 50% of the time, compared to some of the less aggressive strains of the virus which are closer to 70%. But had I known about these side effects and the advent of Telepravir which is supposedly right around the corner and lightens the load of the interferon and ribavirin one has to take, I may have waited.

I am very grateful to be free and clear of the virus of Hep C though, and what’s more, Roche actually paid for my entire one year prescription, which would have been 3k x 12, or 36k I sure as hell did not have. Still… my motivation is drained constantly. Fatigue is always with me, no matter how much I work out or don’t work out, and my memory, both short and long term are definitely affected. The irony is that the brain fog I have is so closely associated to a hangover I may as well have kept drinking. I often wonder if I did some cocaine or amphetamines like I used to (which is of course why I got Hep C in the first place) if it would reconnect all those neural synapses or whatever the hell. Who knows. I know a girl who went back out and used Adderall for a while, and she seemed sharp for a little while, but as fate would have it, she just last week got another DUI so there goes that one million and fifty fifth excuse to relapse, drink and take drugs… foiled again! haha….

Anyway, so yeah, I reported my side effects to Roche, though  I doubt anything will ever come of it, and to be honest, I am grateful the virus is gone. I mean I feel better than when I was on Interferon for sure, but what I wouldn’t give to feel sober, healthy and as lively as I was prior to the treatment. I mean it really was night and day, and I wish there had been an easier method of getting rid of the virus.

I wish someone would do an actual scientific study on Ozone, and Anthony Kiedis and Steven Tyler would both come clean about how and why they both choose to treat it differently.

I wish the tests would show that something was different with me, but all my tests come back saying I’m perfectly healthy, and yet hear I am, every single day, brain fog, tired, waking up with a headache and taking more than 8 advil a day. One day science will have something to definitely indicate the differences in patients pre and post interferon but apparently for now, the benefits, or being cured of Hep C, most certainly outweigh the consequences, or dying of hep c, and of course, not having any measurable side effects. Who can blame dr’s for thinking it doesn’t cause differences if here I am feeling like shit all the time, but completely incapable of proving it to anyone.

Oh the quote, haha, that refers to the Hep C, Liver Biopsy or sword inserted into your side, no fun at all, and though considered minor, very majorly painful. Read my book Hippopotamus Sea: My Viral Sobriety to hear my entire Hep C, Interferon, recovery journey through alcoholism, drug addiction, and of course Hepatitis C, and I give it away 100% free on http://www.books4free.com , it aint no scam, just a site that allows you to read my life story for free, and it’s also available for sale on Amazon and Smashwords for very cheap in hard back, and digital on smashwords.

-JB Smith

Hep C Fame – Steven Tyler , Anthony Kiedis , Pam Anderson , Interferon Chemotherapy, Ozone, Homeopathic or Delusional??

Posted: December 28, 2010 in Uncategorized
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Researching the three I know of, Steven Tyler, Anthony Kiedis, and Pam Anderson, I was glad to find at least Steven wasn’t babbling about some pie in the sky treatment like Ozone, but had in fact gone through 11 months of Interferon treatment and was actually free of the virus in his bloodstream, or otherwise cured. It was in this article from September 2006 in people magazine.

Steven Tyler Reveals Hepatitis C Battle

Steven Tyler Reveals Hepatitis C Battle | Steven Tyler

Steven Tyler

David “Bagel” Ungar/FilmMagic

Aerosmith frontman Steven Tyler has revealed that he was diagnosed with hepatitis C three years ago, and recently went through 11 months of treatment.

“I’ve had hepatitis C for a long time, asymptomatic,” Tyler tells Access Hollywood in a new interview set to air Tuesday. “And I talked to my doctor … and he said now is the time and it’s 11 months of chemotherapy. So I went on that and it about killed me.”

Tyler, 58, says he’s much better after undergoing the treatment. “It is nonexistent in my bloodstream as we speak, so it’s one of those few miracles in doctoring where it’s like a complete cure,” says Tyler.

Hepatitis C is a liver disease spread by contact with the blood of an infected person, according to the Web site for the Centers for Disease Control. Many people who have hepatitis C show no symptoms of the disease.

Tyler also says the treatments, which included taking the drug interferon, were hard in his marriage to his wife of 17 years, Teresa, whom he split from earlier this year.

“I had a little problem at home, to say the least,” he says. “I would run upstairs at night, you know, to put the kids asleep and wake up at 3 in the morning with a nosebleed you know, just passed out from the interferon, the treatment.”

After keeping quiet about the disease for so long, Tyler says he’d like to share his knowledge about it with others.

“I may go on Oprah and talk about this,” he says. “I mean you know it’s just one of those things… it’s one of those things people don’t speak about it, but it is treatable.”

In March Tyler announced he planned to undergo surgery for an undisclosed medical condition, which forced Aerosmith to cancel its remaining tour dates. At the time, his rep said that doctors had advised the singer “not to continue performing to give his voice time to recover.”

So that was cool to find out. It made me want to find more about Anthony Kiedis and Pam Anderson. I found an excerpt from Anthony Kiedis’s book Scar Tissue, but man if I just don’t believe a word of it:

But the doorbell interrupts my reverie. A few minutes later, a beautiful young woman enters the living room carrying an exquisite leather case. She opens it and begins to set up her equipment. Her preparations complete, she dons sterile rubber gloved and then sits next to me on the coach.

Her elegant large glass syringe is handcrafted in Italy. It’s attached to a spaghetti — shaped piece of plastic that contains a small micro – filter so no impurities will pass into my blood stream. The needle is a brand new, completely sterilized microfine butterfly variant.

Today my friend has misplaced her normal medical tourniquet, so she pulls off her pink fishnet stocking and uses it to tie off my right arm. She dabs at my exposed vein with an alcohol swab, and then hits the vein with the needle. My blood come oozing up into the spaghetti – shaped tube, and then she slowly pushes the contents of the syringe into my bloodstream.

I immediately feel the familiar weight in the center of my chest, so I just lie back and relax. I used to let her inject me four times in one sitting, but now I’m down to two syringes full. After she’s refilled the syringe and given me my second shot, she withdraws the needle, opens a sterile cotton swab, and applies pressure to my puncture wound to for at least a minute to avoid bruising or marking on my arms. I’ve never had any tracks from her ministrations. Finally, she takes a little piece of medical tape and attaches the cotton to my arm.

Then we sit and talk about sobriety.

Three years ago, the might have been China white heroin in that syringe. For year and years, I filled syringes and injected myself with cocaine, speed, Black Tar heroin, Persian heroin, and once even LSD. But today I get my injections from my beautiful nurse, whose name it Sat Hari. And the substance that she injects into my bloodstream is ozone , a wonderful – smelling gas that has been legally used in Europe to treat everything from strokes to cancer.
I’m taking ozone intravenously because somewhere along the line, I contracted hepatitis C from my drug experimentation. When I found out that I had it, sometime in the early ‘90s, I immediately researched the topic and found a herbal regimen that would cleanse my liver and eradicate the hepatitis. And it worked. My doctor was shocked when my second blood test came up negative. So the ozone is a preventative step to make sure that pesky hep C virus stays away.

I took years and years of experience and introspection and insight to get to the point where I could stick a needle into my arm to remove toxins from my system as opposed to introducing them. But I don’t regret any of my youthful indiscretions. I spend most of my life looking for the quick fix and the deep kick. I shot drugs under freeway off- ramps with Mexican gangbangers and in thousand – dollar – a – day hotel suites. Now I sip vitamin – infused – water and seek out wild, as opposed to farm raised, salmon.

For twenty years now, I’ve been able to channel my love for music and writing, and tab into the universal slipstream of creativity and spirituality, while writing and performing our own unique sonic stew with my brothers, both present and departed, in the Red Hot Chili Peppers. This is my account of those times, as well as the story of how a kid was born in Grand Rapids, Michigan, migrated to Hollywood and found more than he could handle at the end of the rainbow. This is my story, scar tissue and all.”

“Scar Tissue” is an heartrending story of the life of Anthony Kiedis and the Red Hot Chili Peppers and is an inspiring movement for the spiritual creating of making music and finding the ride tunes and the struggles of a rock band in the music industry.
So yeah, I just have a hard time accepting that Anthony Kiedis has this European cure all, but Steven Tyler had to do a tough as nails 11 month long Interferon regimen that took it’s toll on his marriage, and not to mention the hellish side effects of headaches, exhaustion, and feeling about 50 IQ points lower than where we started. I mean couldn’t Steven Tyler have afforded the same treatment? Yes, of course he could, and he must have researched it, and probably even talked to Anthony about it, only he didn’t go down that road….probably because Anthony read him a horoscope or something fruity and Steven decided to go with something more clinical proven…lets see what I can find a bout Pamela Anderson and her Hep C battle.

“Playboy girl Pamela Anderson has taken up the cause to promote awareness about Hepatitis.

The former ‘Baywatch’ star was diagnosed with liver disorder way back in 2001 after she contracted it through a shared tattoo needle but feels there is nothing to feel ‘embarrassed’ about the condition, The People reported.

The 43-year-old star controls the infection with medical help but personally wants to raise awareness so that other Hepatitis victims do not endure it.

“I’ve had liver biopsies. I get checked every single year, my doctor told me just keep doing what you are doing. I also have the kind that’s easiest to control. There is no cure for it, so the important thing is to encourage people to get tested and not be ashamed. People get embarrassed as you get it from blood-to-blood contact, but it is not just junkies who have it,” said Pamela Anderson.”

Well, I don’t know what I expected. Poor Pam, she is just a blonde bimbo out of Hollywood with her best years behind her. Lol, she’s dead wrong though, it is curable, and her Gastreoentologist has outdated information. Of these three Steven Tyler seemed to have his eye on the ball the most. You know what is intriguing though, is the fact that 3 heavy weight celebrities all received different medical advice. I mean you would think, paying top dollar out west in LA, these three would receive the same fucking consensus but no, all three get different advice, and then of course Anthony called the psychic hotline for a consultation, but still. Nobody laid it out for them in no uncertain terms, what is they have, what they are dealing with, and what is the best way to cure it and/or treat it. Goes to show you that you have to do your own research and take everything with a grain of salt. I’m glad my Doc here in Atlanta, Dr. Hersch, told me it was curable, through Interferon, and that the young do better than the old. I mean, poor Pam sounds like she’s being told to wait to treat it until it’s a problem, but my understanding from Dr. Hutchinson out of Duke, was that the young seem to be on the better side of the 50/50 early responders side, so then, that advice for Pam would be terrible. Sure, maybe they come up with something more effective and less harmful long term than Interferon, but hell, maybe they don’t, and she begins treatment after cirrhosis has set in, and then bam, bad luck Pam, you’re on the wrong side of the 50/50, you don’t respond to treatment, you have a year to live. Wow, that would really suck, and it would all be due to the different kinds of medical advice being offered to these three medically insured celebrities. Jesus, I mean, if these A listers (maybe B) all get different varying medical advice, what a fucking miracle I got good advice, without health insurance as a no name kid out of Atlanta. I must remember to count my many blessings… and pray that Anthony and Pam don’t realize they were wrong way to late.

Please take a moment to read about my average man’s journey through insanity, addiction, Hep C, Interferon, and AA on http://www.books4free.com and check out the strong reviews on amazon at:

-Jared Bryan Smith

My mom would be appalled, but Books4free.com has the #1 Book on Amazon for Hep C

Posted: December 17, 2010 in Uncategorized
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Seriously, if there was any room in that coffin I’m sure she’d be turning in it. We were very much strategically brought up in the southern manor of giving off the appearance of normalcy, even if child abuse, domestic violence, and alcoholism was the prevailing wind inside the house, you’d better had a good cover story when you left the home front. Today, I am an open book, and proud of it. But boy would mama be upset that I’d made it to the top of the list of all Hep C book listed on Amazon. What a dreadful shame. I can literally hear her southern drawl “But JB why would you want people to know that about you.” Haha, because mom, I’m cured of it, and hopefully somebody somewhere will find solace and comfort in that fact. She would have had a hard time arguing that, as she was a good and decent christian woman, just a little preoccupied with social status and the appearance of the status quo. Ultimately the conversation would have ended with “Well, at least you had the good sense to use a pen name.”  haha….

That wasn’t my good sense, I would have much rather written it under my actual name, but through years of trial and error in following my own counsel I decided to allow my sponsor and attorney have their way with that one. The 11th tradition states of course that we must be anonymous in press, radio and films, and therefore I am, regardless of how many Glenn Blecks and the like out there aren’t. It’s difficult though, promoting a book under a pen name.

That being said, we are still well under the 100 books sold goal. Hovering around 50. I had hoped the funny ass cartoons about AA relationships would make people curious about the book but that too hasn’t generated too many book sales. Oh well, I am pretty happy with the new ranking under Hepatitis.

Thanks again for all the grassroots support people, making the number one slot on the Hepatitis C list on Amazon is a big deal even if it’s only taken 50 books to get there! Hope we stay at the top of the list for a while!

Thanks again and I hope everyone enjoys their Christmas!

-Jared Bryan Smith

Guerilla Publicity, Reviews, Promoting a book…

Posted: October 27, 2010 in Uncategorized
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So the initial book launch has begun to fade, and with much stress I’ve watched the title go from top 50k, to under 100k, to 200k, and now is floating somewhere around 400k top books. Which is really still sad if you think of about it considering I’ve sold only around 30 copies or so. So now the real work begins it seems.

Getting the book to reviewers, getting those 30 readers to leave Amazon reviews, making sure Amazon lists it in proper medical categories, under Hepatitis C, Addiction, alcoholism etc, all very important. And then of course writing a decent press release, getting that press release and then hopefully a Press Kit into the hands of editors, producers, etc….  All it will take is one good hit, but it may be hard to do without the aforementioned reviews, and so , again getting the book to recognized reviewers will be crucial.

There are services that will do that for you, ranging from $250 bucks to 1500, but being unemployed, having spent every dime on the http://www.books4free.com launch and not being well funded, books4free is going to need to really begin rolling up their sleeves and getting it out there.

Fortunately his pain, followed by a solemn oath to avoid love again indefinitely, should definitely free up his calender…

-Jared Bryan Smith

Amazon Mysteries Abound!!

Posted: October 21, 2010 in Uncategorized
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Wow, the print on demand arrangement still being pondered, as I wonder why they would claim on my splash page on Amazon that there are only 3 copies left, and to order soon, they throw fuel on the fire with yet another jaw dropper. The book is now for sale, not at the 24.95 I set the price at months ago, but for 17.96.

This is well below their wholesale cost on the entire book, and though I get it, would have been nice to have received an email from the publisher, Books4free.com, but I’m sure he’s too busy golfing, fishing or dating bipoloar women to keep me posted… He swears he received nothing, but who knows.

The point is that Amazon owns his ass and they can set the price wherever they like, whenever they like, and do not have any need to keep him or the author informed. Fortunately books4free.com assures us that it’s actually a good thing for our customers, that the price is down, and though it eats into Amazon costs, we will receive the same pay out per book even though its below cost.

That is where I call bullshit. What lightning source should tell have told us is that most likely Amazon has bought a bulk of the book, since it’s selling well, and hence, gotten that bulk for a cheaper cost, probably saving something like 7 or 8 bucks per book. Which basically means Lightning Source is overcharging books4free.com and myself, something in the neighborhood of 10 bucks a book as there has only been about 20 or so sold, and I bet that’s the cut off for Amazon to actually stock some books. I bet at 100 there is another bulk pricing break.

It would really be nice to be privy to all this information going in, but alas, we are not, and learning these ropes as we go along.

In the meantime, I guess we should just be grateful that the cost is done to 17.96 per book, 7 dollars cheaper than the list price we set, and go ahead and advertise on Facebook and wherever that it’s on sale! Better than a 7 dollar increase I suppose.

Now if said publisher would just stop dating crazy women, maybe he would have the time to get me on some radio and television shows like a proper publisher! Some habits die harder than others I suppose.

-Jared Bryan Smith

Books4free.com – Hepatitis C, Alcoholism, Addiction Memoirs, LSD, The Grateful Dead, Amsterdam and Juvenile

Posted: October 15, 2010 in Uncategorized
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So the momentum is beginning to slow down as the facebook crowd who were awaiting books, are now reading rather than ordering I suppose. At the peak the book was in the Top 100 Alcohol and Recovery books, ranking at #67, but unfortunately I don’t know how many books that is in that given hour. On the overall ranking it’s maxed out at 32,000, which isn’t bad considering there are millions of books on Amazon, but now that it’s back in the 100-200k range, I’m scared to see where it will be in a week. Moving forward reviews, word of mouth, emails, and networking will be more influential than facebook. Guess I need to start sending to reviewers.

The book chronicles being born into alcoholic family, rebelling, dosing LSD/Acid very young, and raising hell through his teenage years, stealing, running away, wrecking cars you name it, until he finally settles down however briefly to have a son, and play family for a few years, however poorly the execution. After divorce at 22 he picks up where he left off, raising cane again, and really doesn’t even begin to slow down as his mom lies dying of cancer. After she’s gone his drinking takes on new sincerity and the challenge I really took on is towards the end of the book where I do my best to explain madness and insanity, delusions, and paranoid schizophrenia to the normal, “earth” person as we recovered alcoholics refer to the unafflicted. It’s hard to explain the color red though to a blind man, and I wonder if anyone will understand the enormity of my massive, intricate, detailed derangement. All I could do was try and explain how lost I’d gotten, how lost I stayed for so long, and how far I’d come back. It’s not a short journey, but given the number of people, just in our class of 1996, that are now dead to alcoholism, addiction  or something related, it’s a story worth reading, and worth understanding, as the solution, the 12 Steps of AA, can work on really any spiritual malady, but most especially addiction.

If the AA 12 Steps could work on me, who went to the edge of the abyss, looked in and had the abyss stare back in, invade and pay rent for years, it can seriously work on anyone. I really wrote the book I wish I’d read when I went to pick up a Million Little Pieces by James Frey. I wanted some hope, I wanted a story as dark as mine, detailed and honest, and messy with guts and humiliation, and something bigger than myself. When I lived that firsthand, I felt it was worth writing, and though a little long, as I’m beginning to hear back, it’s worth the read. If you think it’s long reading, thank God you didn’t live it!

-Jared Bryan Smith


Graphics Designer, final final final PDF

Posted: September 27, 2010 in Uncategorized
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Well here it is September 27th 2010, well past the two weeks I thought it would take for me to finish the book, and I’ve finally come to terms with the final pdf… books4free has uploaded to Lightning Source, where we’ll be selling the hard copy prints, and since we’ll be marketing from the books4free.com website, to amazon, smashwords, and the like, I suppose we’ll just distribute all digital copies for free, and hope that it sells more hard copy books… We’ll see I suppose…

It’s been a long road, and now I’m just exhausted and hope the book isn’t terrible.

JB Smith

Smashwords, Books4free.com, Lightning Source, Blurb.com

Posted: July 16, 2010 in Uncategorized
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Just put down the Fortune magazine in which I saw that Blurb.com is doing 45 million in revenues already. Good for them, that definitely shows this small publishing market continues to grow and thrive. God willing Books4free.com will enjoy just a bit of that success, as it launches with my first title, Hippopotamus Sea.

The cover is done, the editing is done, and the publisher I understand now awaits the Proof book from LightningSource.com to prove that they are actually capable of printing and shipping an actual hard copy book.

After much research, the decision to use smashwords to distribute all the digital formatting of the book seems to be the wisest. They take the book, and after formatting for Mark Coker’s meatgrinder software, which I had to send off the word document to rid it of all spaces, tabs, and page numbers, we will upload to smashwords, which will then, theoritiacally make it available on ipad, epub, nook, kindle, and the like, which is a good deal for me the writer, the publisher, and hopefully the consumer…

I saw on the smashwords website the ability to give away the book 4 free to soldiers in Afghanistan and Iraq, so in the spirit of books4free.com, we will definitely be participating in that venture.

The journey feels like it’s getting closer to completion, but of course, the marketing and selling of the book will just be the next step. The writing, editing and bringing to market though, is hopefully almost done. Once books4free.com is complete and their is a book for sale, for read for free, and digitally, I’ll be excited… right now I’m just feeling a little overwhlemed by it all.

-JB Smith

 

Hepatitis C, Anthony Kiedis, Johnny Delirious, Homeopathic or Pathetic … Hep C Reality

Posted: May 28, 2010 in Uncategorized
Tags: , , , , , , , , , , , , , , , , , , , ,
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I did it. After almost two years of writing my book about Hep C, and hell, 3.5 years of thinking about the story, I decided to google the competition out there and see who else had written stories involving Hep C, and of course, as the challenges are so parallel, sobriety. I don’t know why I was so reluctant to see what was out there, other than, I just didn’t want to be discouraged by seeing like Hemingway’s surprise Hep C autobiography I’d never known about or something, and I just wanted to knock it out before I looked. Anyway, I found some stuff out there, but nothing that blew  my socks off.

First and foremost, you have Anthony Kiedis’ Scar Tissue, a great book I’ve heard, as he’s the front man for the Red Hot Chili Peppers, and God knows we’ve all heard, Under the Bridge Downtown, and can hear the description of his pain as he shoots heroin for the first time. Surely we can expect him to have had his own Hep C struggles, and of course the sobriety struggles that go along with it. I love one of his quotes I just found because it is exactly what happened to me regarding drugs and alcohol:

“You know I love pot, and I love beer, but I am totally sober, just because it completely stopped working for me.
Anthony Kiedis”

Man, I remember hearing that in an AA meeting before it happened, and thinking, What Bullshit. But whoa, what fear descends upon the madman when it occurs. Of an addict for 15+ years, when that day comes that the drugs and alcohol quit working, you will feel fear, and loneliness that few others ever experience. Your best friend of years disappears instantly, and you can’t imagine life with or without drugs and alcohol. I say this is my book, but it remains one of my favorite quotes: “Most of God’s miracles, first felt like a punch in the gut.” Eventually I would be grateful for that day, but I digress. So Anthony Kiedis had Hep C, wrote an autobiography, and says some pretty good shit about sobriety and Hep C. However, a lot of it was rock star, elite, Pie in the Sky treatment that Joe America simply doesn’t have access too. He says he beat it with a controversial treatment called Ozone gas, which is presumably, painless, miracolous, and just as effective as 48 weeks of hellish painful Interferon Treatment. My only objection here, is that if you ask your Dr., any major Gastroentologist in the United States about Ozone, they will laugh it off, or claim the expense is too high, that it isn’t FDA Approved, or just say that the only thing that is medically recognized to cure Hep C is Interferon…which is by the way, expensive, painful, depressing, and maddening. It’s like saying well, the common man has to take Chemotherapy for Cancer, but I, being a pompous rock star, was able to take nitrus oxide, and laugh away my disease.

“And finally yes, it’s true that Anthony Kiedis has hepatitis C. He contracted it somewhere along in his escapades and it is believed that it was caused by the drugs.  He is combating the infection with ozone administered by flea’s and his personal nurse Sat Hari. Ozone is a “wonderful-smelling” gas that has been used legally in Europe to treat everything from strokes to cancer. Most of this information can be found in his biography “Scar Tissue”.”

A wonderfully smelling gas. Interesting. I wonder how true any of this is? It’s all legal in Europe huh? If this is the case, why does the US not use it. Maybe I don’t know shit, and it’s a huge conspiracy against Americans, but as an American I was given one option, by my medical Dr., to defeat Hepatitis C, and that was Interferon, and though it was painful and hellish it did seem to work. After 6 months the disease was clear from my system, and after 2 years, I’m going in today to get it checked again, and hopefully will receive the same result. Hep C free and clear. I’ll ask my Dr. about Ozone today.

The other book I was able to find out there was written by “Johnny Delirious, Hepatitis C, Cured, who claims, from what I could tell briefly that he beat the disease, which he was diagnosed with in the late stages and given 8 months to live, with only homeopathic means. Ie… vitamins and sunshine, and positive thinking. Quite honestly his site links to so many sites charging for Homeopathic cures, you can’t help but think that this guy is just marketing to a demographic already susceptible to delusions and pie in the sky instant gratification solutions. I wonder how much money he’s made selling this book, and/or linking back to all the homeopathic solutions, that have absolutely no medical validity, and my MD claims are bullshit. Milk thistle? Gimme a break. This Virus will attack and kill your liver, and some dipshit is out there selling books about refusing a liver transplant and beating the disease on his good karma and GNC pills. Gimme a break. No I haven’t read the book, and no I don’t plan on it. I don’t know about Ozone treatments or homeopathic cures to Hep C, just as much as I don’t know how to moderate drinking or drugs. I got into this mess, taking short cuts, shooting for the angles, instant gratifications, and feel better cures, and the only way out of the hole I dug for myself, was the long ardous road of Interferon that an actual MD, speciliazing in the liver, suggested I take and whom laughed off, Ozone, and or Milk Thistle, and the other bullshit he offers on his website…

Also, never take medical advice from a guy whose last name is Delirious. Just saying. Maybe it worked for him, I haven’t , and won’t read the book, but for the average, Hep C infected addict, alcoholic, your options really don’t include Ozone, and or Vitamins and Milk Thistle. Follow your Gastroentologist’s advice and take Interferon. It’s tough, but it works, and these other cure alls are just that in my opinion.

On the other hand if Ozone does actually work, and the medical community has kept it out of the states, for profitability reasons or something that sinister, then Shame on them. Interferon changes you for life. If there were medical data, and access to Ozone, like rock stars apparently have, I would recommend it be the new treatment, but I have to assume, the United States, with the best, most educated Dr’s in the world, have a better reason than profits, to keep Ozone out of the US, and Interferon as the major treatment for this debilitating disease. I don’t know, but it just seems really strange, the only two other books out there, offer these fairy tale, delusional options, that weren’t available to me, or any of the other Hep C patients I’ve met here in the States. I guess, that makes my book original then. Unless of course, you are a rock star, then call Anthony Kiedis, he seems to have access to magical gas that smells great.

Please take a moment to read about my  journey through insanity, addiction, Hep C, Interferon, and AA on http://www.books4free.com and check out the strong reviews on amazon at:

-JB Smith

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